Author Topic: follow up from ANA surgery 12/15/10 at House Ear Clinic  (Read 3808 times)

miriamgail

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follow up from ANA surgery 12/15/10 at House Ear Clinic
« on: December 20, 2010, 08:00:12 am »
Dear all,
Thank you for your support during my decision process for treatment. i am very happy to report that my middle fossa surgery on 12/15 with Dr. Fayad and Dr. Schwartz at HEI went amazingly well. My vertigo is gone (was my chief presenting problem) and my bilateral hearing was preserved. I do not have facial nerve paralysis. So i feel very lucky. My surgeons were just excellent, could not have asked for any better. My one remaining annoying (but relatively trivial) side effect is the metallic taste in my mouth and inability to enjoy food that I used to like. Seems a small price to pay. Any advice?

Miriam

Mark241

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #1 on: December 20, 2010, 09:40:33 am »
Hi, glad to hear that your surgery went great, and the outcome was wonderful. I can tell you after my surgery, I really couldnt' "Taste" that well for about 4 weeks. I didnt' have the metalic taste that you describe, but did have strange taste when I ate. I dont' think its' all that strange, and will return in time. Quick recovery to you, and have a great Christmas! 
4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

lori67

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #2 on: December 20, 2010, 11:02:06 am »
Great news, Miriam!  I'd be happy with those results too!   ;D

The metallic taste does eventually go away and food will start to taste like food again.  Unfortunately, it requires a bit of patience, and in my case, a lot of salt and hot sauce!   ;)

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Jim Scott

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #3 on: December 20, 2010, 05:13:42 pm »
Miriam ~

Congratulations on your very successful AN surgery!  I agree with the previous posters that, in most cases, the 'metallic' taste eventually subsides.  Unfortunately, no one can say exactly when that will happen.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

DR

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #4 on: December 20, 2010, 05:17:08 pm »
Wonderful news Miriam!  As stated above the odd taste will eventually subside.  I think it took about 6 weeks for my taste to return to normal.
AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."

Lizard

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #5 on: December 20, 2010, 08:32:13 pm »
Congrats on your successful surgery!!!
 :) :)
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

moe

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #6 on: December 21, 2010, 09:41:25 am »
Now THAT's what we like to read! Just about perfect recovery!
Please take it easy though. You had brain surgery, and need to rest, rest, walk, walk,  you probably know the routine!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

opp2

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #7 on: December 21, 2010, 09:22:57 pm »
My taste has suddenly come back just this past couple of weeks. Hold in there, it will get better. Yay Chai Tea!!!
Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

jaylogs

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #8 on: December 23, 2010, 04:57:00 am »
Yeah, five days after a major brain surgery and that's the only real issue you are having, metallic taste? THAT'S AWESOME! But...don't go start thinking you can restart life at the same pace you are used to, it will take time, and if you rush it, you will slip back. I think all of us on here has seen that one at one point or another! Take care and let us know how you are doing and congrats on a very successful surgery!!
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

miriamgail

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #9 on: December 28, 2010, 10:13:44 am »
Thank you all for your replies and encouragement.
Spoke a little too soon in the relief and euphoria of my surgery being over -have fatigue, trouble sleeping, and also having left sided facial weakness which is clumsy and uncomfortable. Surgeons said could take few months to resolve. Other people's experiences?

Thank you again.

leapyrtwins

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #10 on: December 28, 2010, 05:16:29 pm »
Hang in there, you are still in the early stages of recovery.

My fatigue lasted for months.

Things will get better in time.  You've just been through major (brain) surgery.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: follow up from ANA surgery 12/15/10 at House Ear Clinic
« Reply #11 on: December 28, 2010, 08:50:53 pm »
Miriam .....

You are doing amazingly well.  As Jan said the fatigue is a common thing we all share, as well as the trouble sleeping ..... but it does get better!  Do not push it ..... listen to your body and rest when needed, even five minutes helps.  I found setting an alarm when I napped during the day ..... limiting naps to no more than 30 minutes ..... helped my nighttime rest.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011