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Author Topic: First meeting  (Read 3800 times)

ombrerose4

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First meeting
« on: January 08, 2011, 06:06:24 pm »
I just wanted to share with everyone the news of ANA NYC's first support meeting. The meeting was a great success- we had a very good turnout and I think it was beneficial to everyone. I want to thank everyone that attended and all of you forumites for your support :) :)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

CHD63

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Re: First meeting
« Reply #1 on: January 08, 2011, 06:40:29 pm »
Way to go on the first meeting!  We had two at our first one, but nine at the second ..... thank goodness!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: First meeting
« Reply #2 on: January 08, 2011, 09:54:19 pm »
Lauren -

that is such great news!!!   8)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: First meeting
« Reply #3 on: January 09, 2011, 03:02:22 pm »
Lauren ~

Congratulations on a successful inaugural AN support group meeting!  I hope all future meetings are equally beneficial and well-attended.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

wendysig

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Re: First meeting
« Reply #4 on: January 09, 2011, 06:01:30 pm »
Hi Lauren,

As I said in my PM, sorry I missed this meeting but am glad to hear it was such a success.  I hope to make the next one.  Congratulations!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

ombrerose4

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Re: First meeting
« Reply #5 on: January 09, 2011, 08:36:40 pm »
Hi Wendy,

I was wondering how you are? I never received a PM from you. I'll let you know as soon as we schedule the next meeting. This one went so well and we had 23 members attend. It was a great beginning!
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

G_Man

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Re: First meeting
« Reply #6 on: January 10, 2011, 06:52:41 am »
Lauren
      I want to thank you again.  I thought the meeting was really great.  A few of the people there shared their experiences with doctors that I hadn't heard of in NYC, house ear in California and Pittsburgh. 
I started making my arrangements to attend the symposium last night.
Glen
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Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.

Debbi

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Re: First meeting
« Reply #7 on: January 18, 2011, 06:21:40 pm »
Congrats, Lauren!  So sorry I couldn't make it, but I will plan on coming to the next one - do you have a tentative date yet? 

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

ombrerose4

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Re: First meeting
« Reply #8 on: January 18, 2011, 07:20:00 pm »
Glen, so glad the meeting was beneficial for you. Debbi, I will post the next date as soon as it is set. Look forward to seeing you next time :)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010
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