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Author Topic: Where, oh where, is the Magic Scarf?  (Read 4875 times)

cindyj

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Where, oh where, is the Magic Scarf?
« on: October 01, 2010, 08:39:12 am »
Is the Magic Scarf still in circulation?  I haven't seen anything about it in awhile.  I know the journal, unfortunately, had gone AWOL, but I thought the Scarf was still out and about.  Hope it's still doing its Magic which Debbi started so long ago!  Any one know for sure?

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Keri

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Re: Where, oh where, is the Magic Scarf?
« Reply #1 on: October 06, 2010, 06:34:28 am »
i remember someone else was looking for it a while back, and never knew if it was found at that time.  i never got the scarf, but miss hearing about the stories and seeing it modeled in unique ways!
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Lynn Mc

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Re: Where, oh where, is the Magic Scarf?
« Reply #2 on: October 06, 2010, 08:24:24 am »
I had the Magic Scarf in January.  Definitely lots of MAGIC!  Forwarded it to KIWI in New Zealand.  I did read somewhere that she did send it on.  Hope it is found.  It is very special.
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Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

cindyj

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Re: Where, oh where, is the Magic Scarf?
« Reply #3 on: October 07, 2010, 04:40:31 pm »
Ok, so it looks like it was still in circulation at least in March...hopefully, someone will pop up to let us know where else it may have gone after its trip to New Zealand...

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

iluuvpups

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Re: Where, oh where, is the Magic Scarf?
« Reply #4 on: October 07, 2010, 06:04:23 pm »
I have the Magic Scarf!  I got it from Sue here in Michigan after she had her AN surgery on May 20.  I had mine on May 27.  If anyone wants it, just send me a private message and I will send it to the next person.  Thanks!  --Carol Ann
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Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait

DR

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Re: Where, oh where, is the Magic Scarf?
« Reply #5 on: October 20, 2010, 07:09:25 pm »
*phew* For a moment there I thought the Magic Scarf was gone.  Glad to hear it is still in circulation!

- Dennis
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AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."

Debbi

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Re: Where, oh where, is the Magic Scarf?
« Reply #6 on: November 04, 2010, 07:19:19 am »
Wow - who would have thought that the scarf would still be out there?  Glad it is still traveling the globe and bringing smiles to faces (or half smiles, in some cases!)

Debbi (ground zero for the magic scarf)
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jaylogs

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Re: Where, oh where, is the Magic Scarf?
« Reply #7 on: February 27, 2011, 12:04:41 pm »
Ok, I thought I would bump up this topic to generate some responses, has anyone seen the magic scarf lately? Just curioius!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

kiwi

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Re: Where, oh where, is the Magic Scarf?
« Reply #8 on: February 28, 2011, 01:58:32 pm »
The scarf was here in NZ a year ago but I assure you it did leave the shores of this earthquake ridden land....but the diary never made it here.

Jacqui
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3.6cm AN Left side diagnosed Dec 09.
Translab surgery 16th March 2010
Left SSD, Facial Paralysis
CSF Leak surgery 11th May 2010

iluuvpups

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Re: Where, oh where, is the Magic Scarf?
« Reply #9 on: February 28, 2011, 03:30:57 pm »
Hi everyone.  As I said above, I have the magic scarf here in Michigan.  Just let me know who wants it next and where to send it.  Thanks!  --Carol Ann
Logged
Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait

cindyj

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Re: Where, oh where, is the Magic Scarf?
« Reply #10 on: March 03, 2011, 08:18:12 am »
Hey, Carol Ann!  Thanks for the reminder that you have the Scarf and thanks to Jay for bumping this thread...It can just go to whoever is having surgery next.  Jay has just started the "old" post showing upcoming treatments again.  The link is below.  Carol Ann, I would just contact one of the folks with an upcoming surgery and ask for their address so you can send it to them.  That's how I got it, anyway :D  Let me know if you need any help and I'll be glad to assist...

http://www.anausa.org/smf/index.php?topic=14848.0;topicseen

It's such a great tradition - I hope it can continue to float around the world helping other AN patients. For you newbies out there who don't know what in the world we're talking about, here are a couple of links discussing some of the Scarf's travels (there are many others if you search "magic scarf."  It was a tradition started by Debbi in NY.  Used to have a journal with it, but it was lost somewhere along the way, unfortunately.  There was talk about starting another journal, but don't know if that happened. 

http://www.anausa.org/smf/index.php?topic=10732.0

http://www.anausa.org/smf/index.php?topic=10682.0

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

jaylogs

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Re: Where, oh where, is the Magic Scarf?
« Reply #11 on: March 03, 2011, 01:54:25 pm »
I was just reading some new posts and saw a new user, hendi51, who's husband is having translab in Memphis on March 15th.  They may be a likely candidate! Here's the link to that thread: http://www.anausa.org/smf/index.php?topic=14864.0
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston
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