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Author Topic: odd facial symptom - anyone else with the same?  (Read 3167 times)

mattsmum

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odd facial symptom - anyone else with the same?
« on: February 27, 2011, 06:32:51 am »
hi - i have had radiotherapy for my AN, and i had some facial twitching before treatment, and a lot more since.
i have noticed that the lower part of my face goes into spasm when i screw up my left eye; and when i sneeze my eye seems to go into spasm.
anyone else have this? i know it is not a problem, just curious really.
vikki
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LINAC radiosurgery july 2011 for 1.5cm tumour (uk)

nancyann

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Re: odd facial symptom - anyone else with the same?
« Reply #1 on: February 27, 2011, 07:30:28 am »
Hi Vikki:  Nice to meet you.  I didn't have radiation, but it sounds like possibly synkinesis ?  It's common post op for those who had some paralysis
& start having movement again.  I haven't heard of it post radiation.  Have you spoken with your neurologist about it ?

Always good thoughts, Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

ppearl214

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Re: odd facial symptom - anyone else with the same?
« Reply #2 on: February 27, 2011, 07:36:10 am »
vikki

Pls look for users tsl and elliemae...... both had Proton Radiation in Boston and have run into facial issues...

Phyl
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nancyann

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Re: odd facial symptom - anyone else with the same?
« Reply #3 on: February 27, 2011, 07:42:06 am »
You are so good Phyl !!  (leave it to the radiotherapy expert !).
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

mattsmum

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Re: odd facial symptom - anyone else with the same?
« Reply #4 on: February 28, 2011, 07:58:17 am »
hi thank you for the replies. i was wondering about synkinesis too.
at the risk of showing my complete ignorance - is there any way of finding posts by tls and elliemae apart from trawling through the fora?
best wishes,

vikki
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LINAC radiosurgery july 2011 for 1.5cm tumour (uk)
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