Author Topic: Australia Calling  (Read 10009 times)

CHD63

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Re: Australia Calling
« Reply #15 on: March 01, 2011, 06:43:25 am »
WOW, Suu .....  Thanks for clarifying ..... I just turned that 9 right over to a 6 ..... When I do things like that at home I kiddingly tell my husband, "Well, you know you have a brain-damaged wife." and we laugh and go on.  Sorry I did not catch that!  It does seem unusual for your systolic to be so low at the same time.  Keeping track of it never hurts.

Best thoughts.  Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Suu

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Re: Australia Calling
« Reply #16 on: March 02, 2011, 03:19:20 am »
Hi Clarice - Well there you go... I forgot to put the number 1 on the systolic one but 'you know you have a brain-damaged friend'.  ;D LMBO!

Today it's down again to 135/85 and by the next one on Monday I'd say that it'll behave itself and be smack on 120/80.
My husband's mother passed away and her funeral was yesterday, I started an exercise program 2 weeks ago, and I'm getting information overload on what to do about face so it's no wonder it's a tad high.  I've started breathing exercises and together with the lorazepam I'm sure I'll sleep better.

Of course the sparrows that are flying inside my head, making a noise like no other (tinnitus), isn't helping so the breathing and pills may do the trick.

The eye registrar gave his opinion that the partial tarsorrhaphy will be of great benefit and I may not need as much lube in my eye.  This is rellieving news to my nerves so bring it on!!  :D

Hope you all are as well as can be this fine Wednesday - from the greatest land Down Under.
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

CHD63

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Re: Australia Calling
« Reply #17 on: March 02, 2011, 06:31:44 am »
Hi Clarice - Well there you go... I forgot to put the number 1 on the systolic one but 'you know you have a brain-damaged friend'.  ;D LMBO!
:o :o :o

So glad to know I have such a wonderful new friend, who knows exactly how I think!  ;D ;D  Somehow my fingers frequently do not type what I thought I was thinking ..... nor my eyes seeing what I thought I was!!!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

moe

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Re: Australia Calling
« Reply #18 on: March 02, 2011, 11:00:01 am »
Hi Suu,
Yep those BP readings look a bit better! Now I get it.....

So sorry to hear about your MIL passing. Another stress to deal with. Hope your husband is doing OK.

So the partial tarsorrhaphy sounds much better than a tarsorrhaphy! :o I hated mine, as you know :(
My canthoplastly last week has tightened up the outer eyelid, and made the eye a tad smaller. I get stitches out in 2 days so we'll see how that helps it to feel better. (feeling that suture......)
I don't have to goob up the eye with ointment all day long which is nice too.

Good day to to you :) Is it still hot down under?
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Suu

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Re: Australia Calling
« Reply #19 on: March 02, 2011, 05:48:14 pm »
Hi Clarice and Maureen

Just to be able to say something to a like-minded person is what keeps me coming back here.  It's hard to explain in typing but it's like I don't have to defend the way that I feel to anyone here because you all know immediately.

I hope I can help others too.

Keep on keeping on and I'll tell the world >>>> We survived brain tumours - what's their excuse!?  ;D ;D ;D

Love'n'hugs
♥ ´)
.•´¸.•*´¨) ¸.•♥ ¨)
(,.•´ (.♥ •´ *Suu
(thought I'd jazz my name up a bit  8))
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

CHD63

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Re: Australia Calling
« Reply #20 on: March 02, 2011, 06:25:19 pm »
Fanceeeeeeee!   ;D

That's what I kiddingly (and lovingly) say to my husband, "I had a brain tumor, what's your excuse?" when I do something dumb.  He understands fully and is totally supportive or I would not be able to say that to him.

You are helping others with your wonderful attitude!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

moe

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Re: Australia Calling
« Reply #21 on: March 02, 2011, 09:20:48 pm »
I like the little curlies, hearts, and dots.Does that come naturally or is there a little instruction book online? :D
All I know is the heart <3, which to me actually  looks like two bosoms ;)
')
.
(.
  ).  :P ::)
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Suu

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Re: Australia Calling
« Reply #22 on: March 08, 2011, 12:17:43 am »
Moe - just copy and past my signature and backspace over my name and type yours instead.  ;D

♥ ´)
.•´¸.•*´¨) ¸.•♥ ¨)
(,.•´ (.♥ •´ *Moe 
    There you go. All done. You can highlight and colour it as well.

Yes, it's still hot down here.  We had a couple of days of under 30C but not many this summer.  Bring on winter!

Tomorrow at 12.45 I will find out first hand what sewing one's eye-lid shut feels like.  Whhoooooppppeeee! (add sarcastic guffaw here)

♥ ´)
.•´¸.•*´¨) ¸.•♥ ¨)
(,.•´ (.♥ •´ *Suu
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

ppearl214

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Re: Australia Calling
« Reply #23 on: March 08, 2011, 04:33:10 am »
*ahem*
Folks..... on track, please......Thanks! Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

moe

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Re: Australia Calling
« Reply #24 on: March 08, 2011, 09:19:59 am »
Oh, you caught us!
Prayers and good wishes going out to you Suu for your eye surgery tomorrow! It will help so much in the long run, and hopefully won't be too bothersome post op once you get used to it.....
.•´¸.•*´¨) ¸.•♥ ¨)
(,.•´ (.♥ •´ *MOE  ;D
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Suu

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Re: Australia Calling
« Reply #25 on: March 12, 2011, 11:06:10 pm »
Sorry Phyl

Here's one for you too

♥ ´)
.•´¸.•*´¨) ¸.•♥ ¨)
(,.•´ (.♥ •´ *Phyl
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

Larry

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Re: Australia Calling
« Reply #26 on: March 13, 2011, 06:59:19 pm »
Hi Suu,

Just catching up on this. I live in Sydney and suggest that you may want to get a second opinion on your situation.

Professor Paul Fagan on 93805900 is one of, if not the most experienced ENt man in Oz.

Also, maybe you should join the Australian AN association.

I'll send you a PM with the details


Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Suu

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Re: Australia Calling
« Reply #27 on: March 16, 2011, 08:03:50 pm »
Thankyou Laz.
I had a look at the AN site you've mentioned. I don't want to pay membership fees as I'm on a part pension.
I feel that I'm getting a lot of support from this site and have 'met' a few Aussies here as well.
The Professor seems like he's a great doctor but I can't get to Sydney.
Thanks so much for the information though.
Suu xxoo
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12