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Author Topic: May edition of AN Newsletter  (Read 3063 times)

jaylogs

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May edition of AN Newsletter
« on: May 06, 2011, 05:32:45 pm »
Sorry, no catchy title this time! :)  So here goes...I'll put in the standard disclaimer that if I missed someone or I got the information wrong, please let me know or reply to this thread:
Our newbies keep coming  :( Bummer....but what a place to find if you gotta be here, right?:
BRS89 (Brandon)
JohnB
BruceA (was a W&W now seeking options)
PruneFace
Paul71

Surgeries (from last month and coming this month--good luck guys!):
micca82 4/5
mk 4/26
mandapanda (Amanda) 4/28
allan (srsly810) 5/6
rivergirl (5/31)


Radiation stories:
proudmomof3 (Cheryl) 4/28 (GK)
melissac25 week of 5/8 (GK)

BAHA’s:
Lynn Mc 4/8
Ellenmn 4/22

Milestones
Leapyeartwins (Jan)-- 4th annual MRI came out clean and good!
Mei Mei –Myofacial therapy seems to have helped her chronic headaches immensely!
Kathy M—Head wound treatment has finally been successful!!

That’s it for this edition, thanks for reading and any comments are welcomed!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

CHD63

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Re: May edition of AN Newsletter
« Reply #1 on: May 06, 2011, 08:05:07 pm »
My fault for not putting it on the calendar.  My translab and BAHA abutment are scheduled at HEI on May 11th.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

saralynn143

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Re: May edition of AN Newsletter
« Reply #2 on: May 07, 2011, 05:34:17 am »
Will be praying for you Clarice, along with all of the other procedures this month.
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

dalern

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Re: May edition of AN Newsletter
« Reply #3 on: May 07, 2011, 04:38:19 pm »
Hi Clarice,
Lots of luck.  I know it will go smoothly.  Did you decide which processor you are getting?
~Dale
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Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

Keri

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Re: May edition of AN Newsletter
« Reply #4 on: May 09, 2011, 10:27:55 am »
i've been a slacker on the forum the last few weeks. i need to find out what's up with clarice.

thank you, jay, for your good summary.

keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

CHD63

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Re: May edition of AN Newsletter
« Reply #5 on: May 09, 2011, 10:20:46 pm »
Dale .....

I'm getting the Oticon Ponto Pro. Seemed like the best choice after researching both. Also Dr. Friedman's preference.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: May edition of AN Newsletter
« Reply #6 on: May 10, 2011, 11:07:57 am »
Thanks for the update, Jay  ;D

Just wanted to mention that Carolyn (heyct) had a BAHA implant on 5/9/11.

It probably didn't get on the AN Calendar and therefore didn't make your list.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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