Hello AN family,
I haven't felt well for going on two years now since my translab and Cyberknife but the last couple of months have been horrible. Everything that I deal with daily seems to have worsened. My chronic fatigue is worse (not sure how that's possible!), my facial numbness/pain is worse, my tongue feels more numb than before, my left hand and forearm are way weaker than usual, my left eye (with gold weight implant) would prefer to be closed then open, my mouth is so weak it is difficult to eat and when I wake up in the morning it feels like someone was beating my head and AN side of my face all night. I was just given my 4th Vitamin B-12 shot last week (get them once a week) and they are not helping yet. My primary said to drink vegie drinks...I've done that and all sorts of other things and nothing seems to work. I've been off of work for over two months now and I feel worse now than I did then and then I was feeling pretty lousy. I called my neurosurgeon (whom put me on long term disability) and the office staff said since it's not life threatening...that I will have to wait to be seen at my next appt. which isn't til middle of May. Seems like forever away. Well I do go to see my primary this Thursday so maybe she can help me somehow. I'm concerned that the intensity of my symptoms could mean regrowth of the remaining piece of the AN. I don't know what else could be causing me to feel this horrible. I've had all sorts of blood work which has come back fine. As negative as this all sounds I'm trying to keep a positive attitude....have to for my kids. Thanks for listening.
God Bless,
Laura Lynn
