Medications

[nftwoed]

Hi;

  Is any one else so chronically dizzy, they can't take medications for other purposes because the meds make them even more dizzy, disoriented, or spacy?
  My GP just dumped me today because I can't take the meds he's prescribing. He said I was "not med compliant". I thought he was not a very good physician.
  So; I looked for another GP and two would not see me because I have NF-2.
  GPs just don't have much NF-2 awareness and can't seem to separate routine issues from NF-2 related issues, in my experience.
  "Got a cold?" It must be NF-2 right? NOT!
  Frustrating, as I have high blood pressure to treat. Someone has to prescribe the beta blockers which do help it a lot.

[ppearl214]

I'm sorry to hear this.  I am VERY meds sensitive and have my PCP and my specialists communicate all together to help coordinate meds regiment for me to help work out sensitivity issues. I started a new med last Friday (I have been on it before.... had major side affects..... restarting it against my will at much lower dose).  I spoke to my PCP's office yesterday to alert them that I am still having issues and basically, the decision is left up to me as to whether or not I want to continue to go off.  I know the meds take approx 2-3 wks for my body to adjust, so do I hang tough or do I stop?

It's a challenge that I have also been there, done that.  Having NF2 is a challenge enough. Those that know/met me know I have multiple ailments and trying to get a handle on all of them as well as my meds is challenging as well. 

Much like you, trying to find someone that will help work my meds regiment is most difficult. I am sorry to hear that this dr pushed away... yet, I would not want to be in the care of someone that wasn't comfortable in trying to help treat what ails me.  You can try doing a local search, seek out patients of other PCP's for recommendations. I know insurance coverage is a key factor as some may limit who you can see. 

Hoping others have good insight to help this cause. Hang in there!
Phyl

[nftwoed]

Thanks for sharing, Phyl;

  I'm on Medicare and Medicaid, so insurance should not be a problem in finding a new PCP.
  The letter the Dr sent has why he wished to stop seeing me, and when the new Dr. wishes medical records, the letter will be in the records. They may then decide not to see me.
  I recall there was a time many years ago when I had no PCP, but saw just specialists. With budget constraints everywhere, I wonder if Medicare will continue to pay for non PCP referred specialists.
  Like all, I guess we do the best we can do to get from day to day with a variety of ailments.
  To me, this country is growing a lot like a 3rd world country.
  Maybe you've heard of Medicaid for Kids? I read yesterday, the children with regular insurance were always seen well before the kids on Medicaid, and, almost two thirds of those on Medicaid were denied treatment! That's shocking!
  Have a nice day, and thanks for sharing.  : )

[ombrerose4]

I can't believe your doctor told you he would no longer treat you. I've been in the medical field for 25 years and have worked for many doctors. One of my jobs involved a large diabetic client base and we had many that were non-compliant. If you're a good doctor you try to work with the patient and understand why they are not taking their meds, and then you try to HELP them, not DROP them. Consider yourself lucky in the long run, obviously this doctor has no compassion for his patients. I'm sure there are many doctors out there who will be able to work with you to help you feel better. Good luck and please let us know how things go.

[nftwoed]

Hi;
  I've had a feeling also since many Drs will not accept new pts. on Medicare, that may be part of the reason for dumping me. The Medicare funding issue would give Dr. an 'out'.
  He does risk being liable, in my opinion, if the beta blocker is stopped cold turkey! He gave a one month supply. That has potentially fatal effects if so, or, at least heart damaging effects. I've tried two other Drs. thus far and both refuse to see me. They used NF-2 as an excuse.

[Sam Rush]

If you were in Central California, I would take you into my medical practice.