Psychosomatic headaches?

[Static]

Kathleen,
 What you said...........that's how I was, with headaches constantly and they didn't "fit" anything that the doctors said to me about headaches and my doctor thought I was full of it but he was!  It was and stilll is very frustrating.  STill, all the doctors tell me that AN's do not cause headaches.  I dont' think they can really see the light until they have walked in one of our shoes!  Not that I wish things on anyone, but it's true, it's easier and sometimes comes clear when you experience what someone is trying to tell you.  I am not one who can express myself well without alot of thought behind it and I can't seem to keep my thoughts straight.  I do also believe that power of mind has something to do with it as well, but everything considered and tried and pain still existing, something is still wrong I would think :-/  Then again, why would I know anything about how I feel, I probably have no idea what I'm talking about.  Doctors stink!

[Kathleen_Mc]

Static: Doctor's sometimes are too connected to "the text-book" and need to be a little more personal with thier patient's and listen. This was something my GP agreed with me on when I saw her the second and last time I saw her for anything after my diagnoses and surgery.....she admitted she stopped listening to me and just put her faith in a specialist who had not listened to me either. If your doctor's aren't listening and you have the ability to get another....do it and change until you get one who'll listen.
Kathllen

[Static]

Kathleen,
I know you're right but I need to find the strength to put up with the BS and do it.  What has happened with my gp is that I kept pressing and he couldn't help me so he sent me to a neurologist that I didn't like so I need to find another.  I don't want to travel to the neurosurgeon in the City who did my surgery basically because he's a surgeon not a neurologist.  I will call another practice when I can't take it anymore and go from there :/
Stat

[Kathleen_Mc]

Static: I have yet to find a neurologist that is worth beans. The first one I saw didn't think I should have a tumor so didn't do the right tests and labelled me "nuts" hence the 3-4 years of being pumped with drugs from my GP, the next one was OK, he found the rpoblem but is a movement disorder specialist so  felt post-op I only ever needed follow up with my GP and CAT scans then when I had a fluk seisure (don't drink alcohol when taking Prozac post brain surgery folks) he put in papers to remove my driver's licience then dischanrged me from his services....lead to some nasty conversations with his secretary, next one lied to me about my tumor regrowth (told me the MRI showed scar tissue and then when it showed growth of the so called scar tissue sent me to my neurosergeon and that's how I found out about the regrowth) and insisted that AN's don't cause headaches either before or after resection, the next stood at the foot of my bed while I was in hospital being investigated for low blood sugar and low blood pressure and told me he was asked to see me to rule out neurological cause for these things and that he thought these things were "in my head". Needless to say I have not seen a neuro. for several years...and I don't intend to see another if I can help it. You sergoen is the better best for follow-up's I'd say .
Kathleen

[Janet]

The next time a doctor says that ANs don't cause headaches, ask the doctor on what basis and research are they arriving at their opinion. They should be able to back their statements up.

I think some of the doctors involved in AN treatment or diagnosis are afraid to admit a link to ANs and headaches for fear of litigation of not diagnosising soon enough or their treatment causing headaches and this gets in the way of treating the patients. It is easier to dismiss the headache since there are no lab tests or procedures to prove headaches exist. Just a hunch from my own experience. Since headache neurologists or pain docs make a living treating headaches, I think you'll find more results and expertise there. I did.

[lee]

static - not sure where you live outside of philly - but i'm in collegevile west of king of prussia and i really like my meurologist - his name is dr mcCarren and he has a practice right in collegeville - let me know if you would like his number. he spends a lot of time w/ you and follows up.