Author Topic: New Prayer Request  (Read 10292 times)

ombrerose4

  • Sr. Member
  • ****
  • Posts: 450
Re: New Prayer Request
« Reply #15 on: June 27, 2011, 07:10:41 pm »
More prayers are going out.
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

kraynok2

  • Full Member
  • ***
  • Posts: 114
Re: New Prayer Request
« Reply #16 on: June 28, 2011, 09:58:29 pm »
Soundy,
   I've just caught up on your post about Gina.  I feel for her and her family.  You are a very good friend to her and that will help her through this terrible time.  I will be praying for her and her chldren.  I'm glad she found a good doctor with experience.  Thinking of you....Sandy

Keri

  • Hero Member
  • *****
  • Posts: 1025
Re: New Prayer Request
« Reply #17 on: June 28, 2011, 10:00:28 pm »
i agree with everyone... you are a great friend to her and i hope and pray all goes well with her upcoming surgery (and all the other stuff she's going through). i know you'll keep us posted.

keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Soundy

  • Hero Member
  • *****
  • Posts: 1329
  • prophetic picture done by my 5 year old, June'04
Re: New Prayer Request
« Reply #18 on: July 03, 2011, 06:39:33 am »
say a special little prayer Tuesday when she will be starting treatment ... I will be without phone or computer so won't be able to talk to her before then ...
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Desilu

  • Sr. Member
  • ****
  • Posts: 378
Re: New Prayer Request
« Reply #19 on: July 03, 2011, 06:48:18 am »
Hi Soundy,

Have been keeping her in my prayers and hope all goes well with her first treatment. Ann
HEI July 26, 2005
5mm X 8mm Left AN
Middle Fossa
Dr. Brackmann & Dr. Hitselberger

Soundy

  • Hero Member
  • *****
  • Posts: 1329
  • prophetic picture done by my 5 year old, June'04
Re: New Prayer Request
« Reply #20 on: August 07, 2011, 07:16:49 pm »
Gina has one more week of radiation and chemo which will be followed by a 4 week break ... her spirits are up ...she is a nut ... a good nut but a nut all the same ...she told me to ignore the spelling and grammer... she was using a phone and says she is gonna throw it one day cause she can't type legibly ... taken from email from Gina


im doin good. im into my 5th week of radiation and chemo. after this 6 weeks of nonstop poisoning me theyre gona give me a 4 week break to let edema go down and then i get an mri to see how tumor has responded to treatment. blah
but all of my blood counts are good. my platlets, and hmg are better than they were when i started and my white bld cell count is lovely. i've actually gained a few pounds n back at my normal weight.


keep praying
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Glenda

  • Full Member
  • ***
  • Posts: 154
Re: New Prayer Request
« Reply #21 on: August 07, 2011, 08:58:43 pm »
Praying for Gina, her children and you Soundy!!  You are both blessed to have each other as friends!!
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

Desilu

  • Sr. Member
  • ****
  • Posts: 378
Re: New Prayer Request
« Reply #22 on: August 08, 2011, 06:18:26 am »
Hi Soundy,

Good to hear about Gina and that she is tolerating the treatments better than expected.  Keeping her in prayer. Thanks for the update! Ann
HEI July 26, 2005
5mm X 8mm Left AN
Middle Fossa
Dr. Brackmann & Dr. Hitselberger

Brewers7

  • Sr. Member
  • ****
  • Posts: 389
Re: New Prayer Request
« Reply #23 on: August 08, 2011, 07:06:37 am »
praying down south
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

Soundy

  • Hero Member
  • *****
  • Posts: 1329
  • prophetic picture done by my 5 year old, June'04
Re: New Prayer Request
« Reply #24 on: September 15, 2011, 04:20:26 pm »
great news for Gina ... tumor has shrank ...new plan is to watch it closely, mri every 6 weeks ,
chemo 5 days every month for the next year and no more radiation in the plan for now ... so
 much better that the picture painted for her
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: New Prayer Request
« Reply #25 on: September 15, 2011, 04:34:11 pm »
Thanks for that update, Soundy.

Great news, of course and once again proving that prayer can change things.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

saralynn143

  • Hero Member
  • *****
  • Posts: 1822
  • Sarey Sarey Quite Contrary
    • MVD diary
Re: New Prayer Request
« Reply #26 on: September 15, 2011, 05:28:56 pm »
Hooray for that! Even more prayers going up for even more tumor shrinkage.
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Desilu

  • Sr. Member
  • ****
  • Posts: 378
Re: New Prayer Request
« Reply #27 on: September 16, 2011, 06:07:02 am »
So happy for everyone involved. Will keep on praying. Thanks for the update! Ann
HEI July 26, 2005
5mm X 8mm Left AN
Middle Fossa
Dr. Brackmann & Dr. Hitselberger

Mei Mei

  • Hero Member
  • *****
  • Posts: 1278
Re: New Prayer Request
« Reply #28 on: September 16, 2011, 07:58:06 am »
Dear Soundy,
I am thinking of you and Gina and sending my thoughts and prayers your way.   Zap that tumor!
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

dalern

  • Sr. Member
  • ****
  • Posts: 328
  • My glass is always half full
    • www.dalebarnesrn.com
Re: New Prayer Request
« Reply #29 on: September 17, 2011, 10:56:36 pm »
Lots of prayers and good thoughts, both for her, her family and for you.  You all need all the strength you can muster.
Dale
Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego