Author Topic: Ballerina with AN  (Read 12488 times)

luvzmutt

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Re: Ballerina with AN
« Reply #30 on: September 15, 2011, 12:25:31 pm »
Cindy,

Glad you are doing well.  I left you a voicemail on Sunday night.  Call me in the evening when you get a chance.

Leslie
Right side AN diagnosed 7/10 - 6.1 mm x 7.8 mm
1st follow-up MRI 1/10/11 - 0.9 x 0.3 x 0.4 cm
2nd follow-up MRI 7/11/11 - 1.0 x 0.7 x 0.6 cm
Follow-Up 12/20/11 - no noticeable change
MRI 11/26/12 - .5x1.0x.6 cm
MRI 10//21/13 - 0.8 x 1.0 x 0.7
Some hearing loss AN side and tinnitus
NF1 & optic glioma

moe

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Re: Ballerina with AN
« Reply #31 on: September 15, 2011, 07:24:14 pm »
I'm glad to hear that the surgery went so well!
Curious how your balance and such is coming along. My sister is writing a novel about a ballerina with an AN as mentioned earlier :)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Cindyswart

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Re: Ballerina with AN
« Reply #32 on: September 16, 2011, 06:31:48 am »
The day before I had surgery they did a test to see if the balance nerve was toast- and it was. they told me that was very good news for me, that it meant that I would have less dizziness and fewer balance problems after surgery. They did in fact have to sever that nerve completely so that fact that I was already compensating was a plus for me. I feel a little wobbly, especially when I am tired but I am already wearing heels so all is well. Fatigue is a factor in everything right now- it lessens a little each day.
Diagnosed 4/19/11 An 1.5x1.9x2.0
Surgery 8/23/11, Dr Fukushima.
Total tumor removed. SSD.
Second surgery 11/11/11 for abscess

I'm gona work like I don't need the money
I'm gona laugh like I'm not afraid to cry
I'm gona dance like nobody's watchin'
I'm gona love while I still have the time!

HeadCase2

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Re: Ballerina with AN
« Reply #33 on: September 16, 2011, 07:34:11 am »
Hello Cindy,
   Dr. Fukushima was part of my Skull Base Surgey team too.   Surgery was 6 and 1/2 years ago, and I don't think about it very often any more.   Know that your symptoms will continue to improve with time.
Regards,
  Rob
PS: There is a local ANA group for the Raleigh- Durham area that meets quarterly.  It's informative and great fun to talk to others who have gone through the AN experience.  Send me a private note if you would like the email address for the contact person.
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW