Hi,
I'm almost 4 months post-surgery (retrosigmoid) and I have been dealing with balance issues, numbness on my left side, and uncoordination on my right side (AN side). Lately, I've been feeling really wonky and foggy and really tired, but I also feel like my coordination and reflexes on my right side are getting worse. If I try to use it, my right hand starts trembling. I feel super off balance too. More so than usual. My face is still paralyzed on the right side, my double vision cleared up on its own, and now I just have a little nystagmus during some eye movements. My nystagmus was really bad just after the surgery. What your post tells me is that we'll experience different things and odd symptoms as our bodies heal for many months after the surgery. I feel aches and pains in my neck and shoulders because I know my gait is off, and my body has been compensating for the poor balance. It took a good two months before my body could detect when it was leaning. For a long time, when I thought I was upright, I was actually leaning far to the left. So, this has taken a toll on my body. I would keep track of when your closed eyes feel like they're moving. Like, is it when you're overly tired? Or had you been driving a lot earlier that day? I would ask myself questions like that to try to determine when you feel your worst. I'm going to have to do this, too, because I definitely don't feel quite right. I hope you feel better, but if things get worse, see what your neurologist says. Good luck and keep us posted!
