Dear Becky,
Sometimes it has been too much to bear for us! It's so true we just come here and let off steam for a bit. Life doesn't stop just because we have these little hitchickers no it just makes it harder to cope and slow down ourselves while dealing with these bothersome distractions that buzz inside our heads! It's downright infuriating!! Sometimes I want to pull it out and just stamp on it, wish that it was so simple! But no I have to wait, and wait!
I have to juggle "IRV" and a. Collegegraduation and my aging parents and open a pool, attend a wedding, while people go about their lives!
I was just minding my own business trying to live my life when it had to grow again and mess it all up again!
So, yes it does do good to have a safe place to talk about it, the sheer lunacy of it ruining our lives again this way or we can face up to it, hold each other up and encourage one another to go forward carefully weighing our options as we have a variety of them now. I can remeber a time before when I did not have any options that was before the surgery became well known. My doctor reminds me of that time he describes as the stone age of brain surgery!
Look at me, I am one of the survivors of that time. Look at how far brain surgery has come in 40 years! It is remarkable! Just think how far it will come in 10 years! I have hope!