Trigeminal shocking is unbearable

[sharonov]

This gives me something else to think about.  I've avoided the thought of surgery (trans-lab or retro-sigmoid) because of the hearing loss associated with it.  Adrienne, did you lose the hearing in the affected ear?

[Adrienne]

I definitely lost hearing, but not all of it.  They're amazed at the frequencies I retained  (for now?), but I lost significant volume.  I'm thrilled to have kept hearing though, as I was told it was very unlikely.
I'll have an official hearing test in a couple of weeks and will have a better idea then of what is left.

Adrienne

[Cheryl R]

Hearing loss on one side is not the end of the world.     I do know some will depend on your job also.       I lost mine before my 2001 surgery and didn't even realize it had went all the way.       I knew I was having some problems.               I was told by the first ENT I ever saw if could have a tumor and he said I just get anxious.         So I kind of ignored it more than I should have.    I was also planning to go on a trip and was not wanting to miss it so also ignored things.                  In the long run I wouldn't have been better off since eventually was found to have NF2 in time and more surgeries on the rt side and one on the left.
                                                               Cheryl R

[mindyandy]

I can say I completely understand. My TN is why I'm having surgery. It has calmed down a bit to where I could tolerate it....but tonight my goodness....It hurts. Ugh...I sure hope surgery gets rid of this. Its painful.