Author Topic: Single Session Stereotactic Radiation Update 3 years  (Read 3639 times)

Nannybee

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Single Session Stereotactic Radiation Update 3 years
« on: February 20, 2016, 07:09:55 pm »
Treatment will be 3 years ago in April and my latest MRI shows remarkable shrinkage!

Even though I had a recent significant drop in my hearing in my treated ear, the tumor has shrunk from original 18x19mm to 17x8mm !!! At first I thought it was a typo in the radiology report, but the doctor measured it at my visit and it's correct.

I took a leap of faith with the Trilogy SRS treatment because most of the literature supported Gamma Knife or Cyber Knife, but now am so relieved. My decision was based more on trust and a gut feeling about my neurosurgeon.

AN 18x19 mm
3 meningiomas
NF2
AN treated with SRS April 2013
MRI Feb 2016 AN shrunk to 17 x 8 mm :)
Constant tinnitus in AN ear
Severe hearing loss AN ear

Patti

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Re: Single Session Stereotactic Radiation Update 3 years
« Reply #1 on: February 21, 2016, 04:45:50 am »
Congratulations!!!!!  Did you have any pain during those three years? I am only 3 months out and i do get little zaps of pain and I wonder if there is more to come.  Patti
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Nannybee

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Re: Single Session Stereotactic Radiation Update 3 years
« Reply #2 on: February 21, 2016, 06:34:21 pm »
Patti,
No pain, but about 6 weeks after treatment my vestibular symptoms got much worse. That lasted a few months and then went away.
Is your pain at the pin sites or inside your head?
AN 18x19 mm
3 meningiomas
NF2
AN treated with SRS April 2013
MRI Feb 2016 AN shrunk to 17 x 8 mm :)
Constant tinnitus in AN ear
Severe hearing loss AN ear

Patti

  • Sr. Member
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  • Posts: 361
Re: Single Session Stereotactic Radiation Update 3 years
« Reply #3 on: February 22, 2016, 07:35:21 am »
Inside my head.  But they are very unpredictable.  And they don't last long.  My hearing is already gone from my first surgery.  so that is not an issue.  I am hoping these are just ordinary headaches that I worry too much about.  Your success is an inspiration!  Patti
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

tdlight

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  • Not all who wander are lost.
Re: Single Session Stereotactic Radiation Update 3 years
« Reply #4 on: February 22, 2016, 04:49:24 pm »
Patti -

I am pretty new here and I have only read a handful of your posts, but they are always positive and supportive of everyone else.  Based on your signature you have been through a lot; I would say you are the inspiration.  Thank you!

Terry
Diagnosed 1/15/16
Left Side, 5x3x4 mm, 1 mm from cochlea
High frequency hearing loss (still useful), tinnitus
Three fraction CK at Stanford completed 3/25/16

Patti

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  • Posts: 361
Re: Single Session Stereotactic Radiation Update 3 years
« Reply #5 on: February 22, 2016, 07:16:44 pm »
awww! shucks! i don't feel like an inspiration.  i'm just dealing with bumps along the road! 
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015