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Author Topic: Back from House!  (Read 3781 times)

Marc

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Back from House!
« on: May 15, 2012, 07:47:09 am »
Hello Gang,
It's taken me awhile to get on the ANA message boards...pre and post surgical anxiety got the best of me.  I can't say enough about how lucky I was to be seen at the HEI.  I'm now 3 weeks post-op and feeling much better.  Already walking up to 2 miles a day and hope to start a slow jog next week.  I had a 10 hour surgery for a 4x3x3 tumor in which only 1% was left behind on the facial nerve. 

While there I was fortunate to meet Dave and Ray and even had the opportunity to take a picture with the "magic scarf"...hope it brings me and all of us good luck!

Thanks to everyone who shared their comments, thoughts and prayers with me. 
-Marc     
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4x3x3 Vestibular Schwannoma
Translab @ HEI 04/19/2012
Left SSD, mild facial weakness

mindyandy

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Re: Back from House!
« Reply #1 on: May 15, 2012, 08:38:21 am »
Great to hear your back Marc. Sounds like you are another House success  ;D. Welcome to the postie side of it all.

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

CHD63

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Re: Back from House!
« Reply #2 on: May 15, 2012, 09:08:54 am »
Good for you, Mark!  Glad you got in on the Magic Scarf!!  :) :)

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

lrobie

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Re: Back from House!
« Reply #3 on: May 15, 2012, 10:16:24 am »
Hi Marc,

So glad to hear that you're on the other side and doing well.  I'm always anxious to hear from those who went to House recently as I will be there on July 18th.  I'm still watching for responses from Dave and Ray.  A slow jog next week....I hope I can be that lucky.

Lisa
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6/2009 7mm x 4mm  W&W
8/2011 9.5mm x 5mm
2/2012 UPMC Follow-up , slight growth
Surgery on 7/18/12 w/Drs. Friedman & Schwartz (mid-fossa)
www.caringbridge.org/visit/lisarobie

Tod

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Re: Back from House!
« Reply #4 on: May 15, 2012, 11:19:34 am »
Great news Marc! I am glad things have gone so well.

Best,

Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

cindyj

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Re: Back from House!
« Reply #5 on: May 15, 2012, 11:48:44 am »
Great news, Marc!  Good to hear from you...any way we could see a picture of you and the Scarf?  Been awhile since we had any "show and tell" with it :D

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Jim Scott

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Re: Back from House!
« Reply #6 on: May 15, 2012, 02:28:13 pm »
Hi, Marc ~

Thanks for sharing your positive AN surgery (at HEI) outcome with us.  Wishing you a continued successful recovery.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Suu

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Re: Back from House!
« Reply #7 on: May 15, 2012, 07:19:50 pm »
 :D G'day Marc

All I can say is that I'm jealous!  Fantastic to read of your quick recovery and may you keep on keeping on mate.

Hugs,
Suu xxoo
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4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

davecz

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Re: Back from House!
« Reply #8 on: May 22, 2012, 08:11:19 am »
Hey Marc,

It's great to hear from you and I'm glad we had the opportunity to meet at House. I've been thinking about you and just haven't been up to posting yet. I'll add my story today. You are making incredible progress too. Yay! I've been hearing a lot of good stories from House lately. And your story is another one. I'm doing much better too. Drop me a line when you're up to it. No balance issues for me and my recovery is coming along nicely. Just so you know, I was using your two week bench mark as my first goal to active. I was released not to long after you. Pretty nice feeling. Okay, I'll go post my update. You got me all motivated. Congratulations on your awesome progress.

Dave
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Diagnosed 11/23/2011, R-AN, 3.0cm, Age: 51, very
athletic, symptoms; Sudden hearing loss R Ear, balance
 issues, fatigue, tinnitus. Surgery HEI, 04/27/2012, Dr.
Friedman & Swartz. Post op, translab, 100% tumor removal,
Facial nerve intact, no balance issues, released 3 days post op,
Doing grea
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