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Author Topic: +4 years, all good  (Read 5115 times)

texsooner

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+4 years, all good
« on: October 19, 2012, 08:40:10 am »
Stopping by to say hi y'all...haven't posted anything in a long while, but still look in here pretty regularly.

I recently had my 4th annual post-op MRI and checkup with Dr. Chang here in Houston. He said that it still needs to be watched as sometimes scar tissue from surgery area can have the same appearance on MRI as a sliver of residual tumor, but since he's sees nothing growing in the area, he says it's looking good still. Will have to do another MRI next year, and if everything still looks good, he'll spread them out 2 to 3 years apart going forward.

I still feel great; biking season is over for me, so now I'm training again for the Houston Marathon, hoping to improve my time from last year's time.

I'd like to again thank all on the forum here for their support for me in the past and just want any newbies to see that I'm one of many success stories on the AN journey.   

Prayers for the folks with upcoming treatments and those suffering from any AN related complications.

Take care all,

Patrick
 
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

Jim Scott

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Re: +4 years, all good
« Reply #1 on: October 19, 2012, 12:17:52 pm »
Hi, Patrick ~

Thanks for the update.  I'm delighted to learn that you're doing so well and the latest MRI doesn't indicate any re-growth.  Best of luck in the January Houston Marathon.

Jim

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: +4 years, all good
« Reply #2 on: October 20, 2012, 01:28:43 pm »
Hi, yourself  :)

Glad that the news is all good.

Congrats on your 4th ANniversary!!!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

skipg

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Re: +4 years, all good
« Reply #3 on: October 20, 2012, 01:34:00 pm »
Patrick, very encouraging and thanks for the update.
Skip
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Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

Suu

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Re: +4 years, all good
« Reply #4 on: October 21, 2012, 03:13:40 am »
Happy Anniversary! Excellent news  ;D

Suu
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4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

Brewers7

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Re: +4 years, all good
« Reply #5 on: October 21, 2012, 08:09:38 am »
Since I am coming up on the 4 year mark, I found your post very encouraging.  Thanks.
« Last Edit: October 24, 2012, 09:29:02 am by Brewers7 »
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

It is what it is

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Re: +4 years, all good
« Reply #6 on: October 24, 2012, 09:08:21 am »
 Thanks for posting such a positive report. It's helpful for those of us who are in our first few months since surgery.

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Soundy

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Re: +4 years, all good
« Reply #7 on: October 30, 2012, 08:09:03 am »
Congrats on your good report
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery
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