It's my mom's 7 year anniversary today: Seven years ago that she acquired a programmable shunt from suffering GK-related hydrocephalus. She had surgery in May 2005, went psychotic from Decadron in September and was having a shunt implanted before a new year began.
She had perfect hearing in my ears, then the misdirected GK hit, chronic vertigo, she lost hearing in the AN ear...and now in the past 72 hours she's on a steady no-brakes decline of hearing loss in her good ear. We were at the ENT on Thursday who prescribed a steroid pack in hopes that the hearing loss wasn't GK or AN-related. She refers to a dial tone as a buzz=I'm scared ****less for her.
Is there anyone out there who has sadly had the same bad outcome? Her ENT suggested a cochlear implant...but I'm thinking the shunt will disqualify her, I mean, how much can one brain and skull withstand?? It's a skull-it's not like it's a wall where you can hang as many framed pictures/paintings as you like.
Has anyone had any luck with Avastin?