Author Topic: John Hopkins md  (Read 3802 times)

AnthonyNJ

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John Hopkins md
« on: December 22, 2012, 12:51:59 am »
Any advice on a cross nerve graft using Sural leg nerve? I'm 41 and 8 months with no movement from a 4 cm pain in the butt AN removed 4/23.  I was told nerve intact but very stretched/comprised during surgery. Don't want to do another surgery if it's coming back but also don't want to wait too long and miss any opportunities?  Any advice here?  Also going to see Dr BoAhene at John Hopkins in Baltimore anyone use him or dr Byrne?  Thanks in advance for any advice!  nervous in NJ!

Brewers7

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Re: John Hopkins md
« Reply #1 on: December 27, 2012, 03:36:30 pm »
Just used Dr. Byrne on the 18th for an outpaitient procedure/ 5th nerve transfer to 7th.  Won't know results for 6 months but satisfied with doctor.
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

leapyrtwins

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Re: John Hopkins md
« Reply #2 on: December 27, 2012, 07:52:21 pm »
Kay (Forum name Kaybo) went to Dr. Bryne and had very good results.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

nancyann

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Re: John Hopkins md
« Reply #3 on: February 01, 2013, 06:37:33 pm »
Hi Anthony: I went to Dr. Patrick Byrne @ Johns Hopkins for the T3 (Temporalis Tendon Transfer). He is amazing. I have permanent facial paralysis & was not looking for any grafting, just looking for symmetry.
He will evaluate and let you know what you need. I highly recommend him.
Best wishes, always good thoughts, Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

mandy721

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Re: John Hopkins md
« Reply #4 on: February 02, 2013, 10:59:02 pm »
My husband suffered significant damage to his facial nerve when his 3+cm AN was removed.  At 9 months  out there was no change and his surgeon suggested  facial reanimation surgery.  Ken wouldn't consider another surgery after a very difficult recovery from the first one. 
Here on the boards, we read about Jackie Diels, the facial retraining therapist, based at the University of Wisconsin Medical Center and got in touch with her.  She was able to detect the slightest indication that the facial nerve was healing and felt that Ken would benefit from facial retraining therapy.  And he has!!! His face has improved tremendously.  If you were to meet him, you might notice a slight asymmetry, but nothing that would indicate he had grade 4 facial paralysis after surgery. 
If your nerve is intact, I urge you to get in touch with Jackie Diels in addition to exploring surgical reanimation options.
Miranda
Husband diagnosed 5/30/09 with 3.2cm right AN
Surgery at  Columbia Presbyterian 8/4/09
Platinum eye weight implant - 8/17/09
17 days in hospital and rehab
SSD, facial weakness, some tinnitus, headaches , balance and eye problems