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Author Topic: Going for MRI  (Read 10613 times)

LisaP

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Re: Going for MRI
« Reply #15 on: September 26, 2013, 02:29:38 pm »
Met with Dr. Mason today to get the results of my MRI.

After 5 years now I have no growth and my hearing is still 100%.  I can now go another 2 years until my next MRI.  I am relieved but I have been experiencing dry mouth since January so he sent me for blood work to see what is going on with that.

thanks for all of the well wishes as I continue on with this journey and continue to manage my symptoms.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Jim Scott

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Re: Going for MRI
« Reply #16 on: September 26, 2013, 03:50:19 pm »
Congratulations, Lisa!   ;D

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Derek

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Re: Going for MRI
« Reply #17 on: September 26, 2013, 04:12:54 pm »
Great news Lisa...long may you continue in W & W  :)

Best Wishes

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

Mickey

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Re: Going for MRI
« Reply #18 on: September 27, 2013, 10:48:18 am »
Great news Lisa! As far as other symptoms many can be caused by unrelated things.  I`ve had a few and just take em on as they come...  Best wishes, Mickey P.S. long live the W+W brigade!
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Sheryl

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Re: Going for MRI
« Reply #19 on: September 28, 2013, 01:51:58 pm »
Wonderful News - thanks for keeping us posted.  Glad we are not losing one of our W&W team mates  ;D
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

LisaP

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Re: Going for MRI
« Reply #20 on: October 12, 2013, 02:56:11 pm »
Again thanks for all of the well wishes as I move on this journey for another two years.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Susan A

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Re: Going for MRI
« Reply #21 on: October 20, 2013, 07:07:05 am »
That's great news Lisa! Lucky you - no growth and 100% hearing!! I've had a small amount of growth and steady hearing loss - down to 52% word recognition in my AN ear now :-(
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2011 8 x 7 mm AN, & 20 x 22 mm M found, both on the left. Mosaic NF2 diagnosed. Some hearing loss
2014 hearing 30% on left, now using hearing aid (HA)
2015 Now have CROS HA - no longer hear enough for HA to be useful in AN ear
2016 Use an FM system on occasion at work to supplement HA

LisaP

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Re: Going for MRI
« Reply #22 on: October 21, 2013, 01:00:18 pm »
Thanks Susan for responding.  I still can't believe that I am going to W&W for another 2 years and I have 100% of my hearing.  90% of people with ANA's usually have some kind of hearing loss,  I guess I fall in the 10%.  That is why I decided to continue to W&W due to I still have my hearing.     ;D

LisaP
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Suu

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Re: Going for MRI
« Reply #23 on: October 28, 2013, 03:17:46 am »
Short and sweet
;D
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4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12
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