Author Topic: almost definitely AN - pretty scared  (Read 8590 times)

stuartl

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Re: almost definitely AN - pretty scared
« Reply #15 on: August 18, 2013, 04:08:14 pm »
My weekends are usually very tame, and I don't see many people. That's not so bad, but with all of my concerns, the weekend feels far lonelier than normal.

I don't have any real news to share, but via a church connection, I was able to speak with the radiologist who will likely be looking at my MRI tomorrow. He's going to give me a call tomorrow night, when he should know something. This will definitely be scary, but I think it also means that I'll know what's going on before the neurologist does. The only thing is that I won't be looking at it with him, but I'm not sure that matters much. His educated viewing is what matters most.

Hope everyone's having a good weekend.

Trippy

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Re: almost definitely AN - pretty scared
« Reply #16 on: August 18, 2013, 10:18:02 pm »
hang in there stuart let us know

Gloria Nailor

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Re: almost definitely AN - pretty scared
« Reply #17 on: August 19, 2013, 07:04:49 am »
Hoping for a clean MRI for you and that you do not have an AN, but if you do this is a great group to be a part of, everyone knows how you feel and what you are going through.  You are in my prayers, hoping your anxiety level isn't too high, take care.
4/2011 diagnosed with 3 cm AN on right side
6/15/2011 retrosigmoid craniotomy which resulted in SSD, severe facial paralysis
7/2011 gold weight placed right eye lid
5/2012 tarsorrpapny right eye
6/2012 woke up with a smile
1/2013 cranioplasty because a screw came out of my head!
6-7/13 regrowth, GK

phantagrae

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Re: almost definitely AN - pretty scared
« Reply #18 on: August 19, 2013, 03:59:11 pm »
@phantagrae: I have never heard of 30 GK treatments?

Yes, it's actually FSR.  I misspoke in my signature (and I haven't yet gone back to correct it...
Numbness on right side of face beginning some time in 2012 through early 2013
MRI 4/15/13
20mm x 19mm x 16mm intra and extra canalicular AN on Right Side.  ("Largely extracanalicular")
FSR treatment beginning on July 22, 2013--going for 30 treatments

stuartl

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Re: almost definitely AN - pretty scared
« Reply #19 on: August 20, 2013, 07:42:46 am »
I spoke to the radiologist last night and had to ask him to verify after he told me that the MRI showed no tumor. I was and still am very surprised, given that my "story" is very indicative of AN, but nftwoer was right: the MRI is the word, not the symptoms or what one makes of them.

Thank you to everyone here for your kindness and support.

Best wishes to all of you,

Lance

CHD63

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Re: almost definitely AN - pretty scared
« Reply #20 on: August 20, 2013, 08:43:09 am »
Lance .....

Thanks for letting us know the results of your MRI.  I am most grateful you do not have an AN.  However, I certainly will continue to pray that you find an accurate diagnosis and treatment for whatever is causing your symptoms.

Let us know what your diagnosis is ..... believe it or not, knowing that would be very helpful to people facing the uncertainty of the cause of similar symptoms to an AN.

Thoughts and prayers .....

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

stuartl

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Re: almost definitely AN - pretty scared
« Reply #21 on: August 20, 2013, 11:04:49 am »
Thank you for your kind words and continued prayers, Clarice. Hopefully, one of the doctors will figure this out. *If* any of them ever comes up with a reason, I'll post to this thread.

Lance

Trippy

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Re: almost definitely AN - pretty scared
« Reply #22 on: August 20, 2013, 01:24:37 pm »
Good news Stuart I hope its nothing major.

Gloria Nailor

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Re: almost definitely AN - pretty scared
« Reply #23 on: August 26, 2013, 09:23:32 am »
Glad to hear you do not have an AN, hopefully you will have a diagnosis soon though and can be relieved of your symptoms.  Be well!
4/2011 diagnosed with 3 cm AN on right side
6/15/2011 retrosigmoid craniotomy which resulted in SSD, severe facial paralysis
7/2011 gold weight placed right eye lid
5/2012 tarsorrpapny right eye
6/2012 woke up with a smile
1/2013 cranioplasty because a screw came out of my head!
6-7/13 regrowth, GK