Author Topic: 3rd Year Anniversary  (Read 2782 times)

Suu

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3rd Year Anniversary
« on: August 17, 2013, 06:59:08 am »
Tomorrow (18th of August) is my 3 year anniversary.  Calls for a recap?  Ok :)
 
4cm Left side AN Translab August 18th 2010
Facial nerve not working. 
Nerve conductions done on Jan '11. Repeated 23rd May '11. Result of both tests - No signals on facial nerve. 
SSD left side. 
5 ops in 6 weeks to fix CSF leaks.
3 months in hospital. 
Tarsorrhaphy 9 Mar '11. 
Sling Thur 16 June '11. 
12/7 nerve graft 9 Feb '12. 
Vocal cord stopped working 9 Feb for 6 months.   I had speech therapy and now have a hoarse/husky voice and will be eating soft foods for ever.
Hearing aides fitted Feb 2013.
Facial sling released Feb 2013 (Didn't work and has left me with a permanent toothy smirk on the left but it's better than a scowl).
Another tarsorrhaphy to be done this month for extreme 'dry eye'.   (More about that when I get over the shock as I was only told about it yesterday).
Wonky-headedness is with me and so is my faith that I can smile through anything and not let it rule my life. 
Does all of the last 3 years define who I am/was/will be?  You bet it does!  Bring on the next 3 years and I'll come back here and tell you the same thing that I'll tell you now ..................
I AM WOMAN - HEAR ME ROAR!!!!!!
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

Tod

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Re: 3rd Year Anniversary
« Reply #1 on: August 17, 2013, 09:00:43 am »
Good on you, Suu! Rock on, I think you are wonderful with your attitude.
-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Suu

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Re: 3rd Year Anniversary
« Reply #2 on: August 27, 2013, 06:36:12 am »
Can you see me curtseying now? Thanks. :)
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

It is what it is

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Re: 3rd Year Anniversary
« Reply #3 on: August 27, 2013, 01:27:35 pm »
Congrats!  You are an incredibly courageous woman with an incredible positive attitude!!!!  What a role model for the rest of us.  Thanx! 

karen
.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Brewers7

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Re: 3rd Year Anniversary
« Reply #4 on: August 28, 2013, 10:17:03 am »
Go Suu!
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

Suu

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Re: 3rd Year Anniversary
« Reply #5 on: August 29, 2013, 04:01:19 am »
Thanks heaps for all of the support so far.  We have a wonderful family here. <3
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

jaylogs

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Re: 3rd Year Anniversary
« Reply #6 on: September 03, 2013, 07:40:48 pm »
Hi Suu!! Congrats on the Anniversary!! It is truly an inspiration that with everything that you have experienced you are still maintaining a positive outlook on everything.  Please keep posting things like this so everyone may face a similar situation will find encouragement with your experiences. Take care and keep rockin'! :)
Jay`
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Suu

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Re: 3rd Year Anniversary
« Reply #7 on: September 05, 2013, 07:00:56 am »
 ;D Thanks Jay
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12