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Author Topic: head pain  (Read 4904 times)

mrmel

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head pain
« on: November 24, 2013, 05:14:49 pm »
Just wondering 21 views to my comment on my head pain and no comments, nobody on here has heard of this before?
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arizonajack

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  • Arizona - It's a Dry Heat
Re: head pain
« Reply #1 on: November 24, 2013, 05:36:49 pm »
Use the search feature in the upper right hand corner of the page.

You might find some old discussions about headaches.
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

Cheryl R

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Re: head pain
« Reply #2 on: November 25, 2013, 10:22:31 am »
The MRI is not of the neck as mentioned before.       That would have to be a separate one.          I also will add that it is possibly not even related to an AN and could be a whole different cause.     Neck related possibly due to disc,muscle spasms etc.    Blood vessel related which the MRI would not show.        This could even be 2 issues one has with AN and the other unrelated issue.       Upper spinal tumor even which some of us can have who have NF2.          So if could be that your specific issue might have not happened to those who have ANs.                      I know it is hard when wants to know if someone has had the same issue and what they have had happen with it.              A neurologist might have some answers for you and not an GP or ENT.                 it is frustrating to have drs be not sure and one has to make a round of drs and tests to find out for sure.                         I hope you do find out in time.                Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

mrmel

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Re: head pain
« Reply #3 on: November 25, 2013, 11:32:59 am »
Thanks for the reply Cheryl, I think you misread my thread. The pain is at the base of the skull deep into and towards the brainstem right where I had my surgery, a very tender annoying sick feeling pain that feels much like it did following surgery 16 years ago. It is not on the spine or in the neck, it is base of skull in the original tumor area.
                Mel
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mrmel

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Re: head pain
« Reply #4 on: November 25, 2013, 11:35:27 am »
Also regarding mri most and all of the mris that I have had over a 16 year period always included the neck and brain and brain stem as they should to be certain of the effect the tumor may be having on the entire region. They do not however do the entire spine unless they suspect nf2
                              Mel
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