Author Topic: The Other Side?  (Read 2535 times)

terisandler

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The Other Side?
« on: November 21, 2013, 04:48:32 pm »
Wondering whether or not anybody has experienced symptoms on the non-AN side.  I'm having lip twitches and tearing on the opposite side.  Will try to call my radiation oncologist tomorrow and have a follow up MRI in a few weeks but still interested in hearing from my AN peeps.   :-\
3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

WiscWahe

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Re: The Other Side?
« Reply #1 on: November 23, 2013, 08:16:54 am »
This is my question as well. I have significant hearing loss and tinnitus on my non-AN side. My AN is very small, 3mm. My doc wants to remove it through surgery in an attempt to save the hearing. However, I understand there is still a 25% chance of still losing my hearing in my AN ear. I have surgery scheduled in January but I am still wavering.

The doctor says the hearing loss in the nonAN ear is not related to the an (most likely).

What are you considering?

Stefan
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3mm AN Growth Detected May 2013
No growth as of Nov 2013
Significant hearing loss in Non-AN Ear
W&W bit considering Middle Fossa

terisandler

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Re: The Other Side?
« Reply #2 on: November 23, 2013, 09:53:10 am »
I already had CK so I called my radiation oncologist's office and they are going to have him review and decide whether or not to move up my MRI.  I already have no useful hearing in my AN ear.  I hope to receive a callback on Monday.
3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

WiscWahe

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Re: The Other Side?
« Reply #3 on: November 23, 2013, 10:12:23 am »
Wishing the best as you work through thins.
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3mm AN Growth Detected May 2013
No growth as of Nov 2013
Significant hearing loss in Non-AN Ear
W&W bit considering Middle Fossa

terisandler

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Re: The Other Side?
« Reply #4 on: November 25, 2013, 03:24:01 pm »
Heard back from my radiation oncologist's office and moved up the next MRI and follow up visit for the results. Thanks for the good wishes - hoping it's nothing.
3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!