Author Topic: Possible cure for deafness  (Read 3189 times)

joanna_an

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Possible cure for deafness
« on: February 07, 2014, 10:18:59 pm »
I read this article.. Thought it could be of interest :)
http://www.medicalnewstoday.com/articles/250197.php

Really hope this gonna happen soon..
31 years old female
Left AN 18x16x13mm diagnosed on the 17th of October 2013
21mm on the 19th of February 2014
Hearing loss, tinnitus
SRT 12th March 2014

arizonajack

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Re: Possible cure for deafness
« Reply #1 on: February 08, 2014, 10:38:55 pm »
I'll be the first on line for that treatment.
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

Jim Scott

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Re: Possible cure for deafness
« Reply #2 on: February 09, 2014, 02:25:31 pm »
Joanna ~

Thanks for the link.  This research news on stem cells being used to regenerate hearing nerves is both exciting and encouraging!

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

joanna_an

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Re: Possible cure for deafness
« Reply #3 on: February 09, 2014, 07:13:11 pm »

I had a look after posting at the date of the article.. It's actually from September 2012.. I wonder why doctors don't know about this possibility.. I told my radiation oncologist that I do not want to cut my nerves out due to the possibility of a cure somewhere in the future.. and he told me that I will never get my hearing back (there will never be something to cure this nerve damage).. But this article proves otherwise..
31 years old female
Left AN 18x16x13mm diagnosed on the 17th of October 2013
21mm on the 19th of February 2014
Hearing loss, tinnitus
SRT 12th March 2014

Kathleen_Mc

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Re: Possible cure for deafness
« Reply #4 on: February 10, 2014, 03:05:31 am »
Encouraging for those who still have the auditory nerve! (mine was cut right back to just where it "plugs in" to the brain") .....don't think this would be helpful for those like me!
1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)

terisandler

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Re: Possible cure for deafness
« Reply #5 on: February 10, 2014, 10:43:54 am »
I did not see ANs mentioned while reading the above mentioned article.  It seems to relate to a different, hereditary or environment caused deafness relating to hair cells in the ears.  I am definitely no expert but I do not interpret anything I read as this being a potential cure for deafness.
3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

joanna_an

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Re: Possible cure for deafness
« Reply #6 on: February 10, 2014, 05:57:49 pm »

This is what the article says:
"The problem lies mainly with the neurons or nerve cells connecting the brain to the inner-ear hair cells that translate sound into electrical signals.

People with this form of hearing loss are usually born with it, and some cases are known to be caused by faulty genes that have already been identified."

I think damage caused by an AN can be included.. I think the treatment could work for us if and when it is going to be available.
31 years old female
Left AN 18x16x13mm diagnosed on the 17th of October 2013
21mm on the 19th of February 2014
Hearing loss, tinnitus
SRT 12th March 2014