Author Topic: List of questions anyone?  (Read 4420 times)

Doulos

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List of questions anyone?
« on: November 29, 2011, 06:57:53 pm »
I go to meet with the GK Dr and the Neurosurgeon Dr tomorrow to talk about what we should do. I have already had one surgery and with that he removed an 8cm tumor but left a tiny bit behind. There is some regrowth where he removed the tumor. So. just wondering if anyone has a good list of questions for both Drs?

CHD63

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Re: List of questions anyone?
« Reply #1 on: November 29, 2011, 07:08:02 pm »
Hi Doulos .....

There is an excellent list of questions on the ANA website:  http://www.anausa.org/index.php/overview/questions-for-treating-physician

Good luck.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Tod

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Re: List of questions anyone?
« Reply #2 on: November 30, 2011, 08:14:11 am »
Doulos,

The questions I asked the second time around, and I start FSR Dec 28 are these:

1) Why not another surgery? (This was just to confirm what I thought I already understood. Given that my first surgery was 32 hours, I did not want another one. Basically, my tumor is just not accessible and is attached to the artery and this is very sticky and bleeds a lot.)

2) [to the radiologist] Are headaches often associated with various forms of radiation therapy? (There is plenty of evidence on this forum that suggests a strong correlation, yet some docs, including one locally, deny the possibility. Mine was clear that there is not nearly enough known about headaches in general, and that RT can lead to headaches for some patients, so his goal is to work with a team to treat the pain and try to relieve the symptoms.)

3) Why do you recommend one treatment over another? Would you be offended if I consulted with specialists in {GK/CK/Linac/etc - whatever is not the doc's RT specialty}?


These are in addition to the ANA questions. For each of us, I think it comes down to our particular concerns and fears.

I hope this helpful, best of luck!
-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Hokiegal

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Re: List of questions anyone?
« Reply #3 on: August 12, 2014, 07:14:13 pm »
Hi everyone, has the link above been updated?  I'm trying to access it, and it doesn't seem to be working for me.  Thanks!
3.0cm AN diagnosed 08/11, age 47
surgery 09/11, Dr. Patel (MUSC), 95% removed
SSD with tinnitus, right side facial paralysis, vision and balance issues
facial movement much improved, and still returning after 3yrs
"We are better than we think, and not quite what we want to be."  Nikki Giovanni

CHD63

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Re: List of questions anyone?
« Reply #4 on: August 12, 2014, 08:49:19 pm »
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011