Author Topic: 2.5 Year Update  (Read 1878 times)

DanFouratt

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2.5 Year Update
« on: April 19, 2026, 03:36:21 PM »
I had my second follow-up MRI this past Friday—without contrast. The good news: no growth.

The delay between scans was due to other medical issues, so this was only my second MRI since radiation 2.5 years ago.

Choosing no contrast sparked a few lectures. The technician questioned why, saying contrast provides better information. Since I’m at a teaching facility, I got the “two-for-one” experience—a fellow also came in and asked why I declined contrast, mentioning it makes it harder to assess size and changes. I explained that I don’t like how it makes me feel, though I still got a bit of push back.

When I met with the doctor, we discussed the next MRI. He recommended doing it in a year since I’m still under five years out—but confirmed it can be done without contrast. I appreciated that. He did add that some contrast may not fully leave your system, though I’m not entirely sure what he meant. Either way, I’m relieved I can continue without it.

I also want to thank this group. About 34 months ago, I felt lost and alone. Finding this community was a turning point for me. You helped me realize I wasn’t alone, answered so many of my questions, and provided invaluable resources—especially the past videos, which meant a lot during the early stages of understanding everything.

Thank you all.

Remain AN STRONG,

Dan
Dan Fouratt             65 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

DanFouratt

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Re: 2.5 Year Update
« Reply #1 on: April 19, 2026, 03:56:08 PM »
It is strange to reply to your own posting. I know people have mentioned wanting to hear good news.  I forgot to mentioned I have no issues with the CK procedure.  That is not to say tinnitus went away (it did not) and my hearing improved (it did not), but they remain they same.  I have no other issues associated with the AN (VS) or the treatment associated with it. No headaches, no dizziness, no  vertigo ....

Stay Strong,
Dan

Dan Fouratt             65 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

Mark F.

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Re: 2.5 Year Update
« Reply #2 on: April 19, 2026, 06:35:16 PM »
Hey Dan,

Glad you had a positive follow-up.  I too had a tough time before treatment partially because of the lack of positive results being posted. I'm glad you stuck around on here.  I knew as soon as I found this website that I was going to stick around after treatment and try to be a  positive influence for all those scared people who were searching for answers like I was.  There are some people on here who have become kind of like an extended family because of our shared experiences.  Although I have never met any of them, and I may never meet any of you in person, I feel like we are all friends, brought together through an unfortunate coincidence.  I value each one of you, and even though there are relatively few posts made on this forum, I stop by almost every day to check in and see if anyone has questions or follow-up reports.   Stay well my friend. 

mwatto

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Re: 2.5 Year Update
« Reply #3 on: April 20, 2026, 03:53:42 AM »
Hey Dan- am abt to get my 7th MRI after CK and will post. Hearing stable no change. But I continue to get geniculate neuralgia and it affects my sleep. I think maybe an artery compressing nervus intermdius in ear. like trigeminal pain. nyway will report back after MRI. Havent had a goodnights sleep for 7 years. No pain in day- only when lying on that side.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2021, 2022 - stable no change
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2024, 2025: No change in AN size or hearing status.

DanFouratt

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Re: 2.5 Year Update
« Reply #4 on: April 21, 2026, 07:35:23 PM »
Michelle,  Sorry to hear you are suffering from this. I hope your MRI goes well. If I recall you are a non contrast person.

Take care,
Dan
Dan Fouratt             65 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

mwatto

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Re: 2.5 Year Update
« Reply #5 on: April 22, 2026, 08:10:09 PM »
Thanks Dan! Actually its gone away at the moment and I feel great! Sleeping deeply on just a hot magnesium bath before bed (was on medical cannabis which kind of helped). Anyway will let you know how MRI goes- at least the audiology report was excellent.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2021, 2022 - stable no change
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2024, 2025: No change in AN size or hearing status.

Mark F.

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Re: 2.5 Year Update
« Reply #6 on: April 22, 2026, 08:19:34 PM »
Hey Michelle,
Glad you found relief.  Those pains can be pretty bad.   You ever try sleeping slightly elevated?  I noticed quite a difference when I came home from the hospital between laying flat on the bed and the elevated position I had with the hospital bed.   My first night at home I got really sick from laying flat.   After a couple  days I was fine laying flat, but if your getting pressure laying down I just thought it might help.  Just a thought. 

mwatto

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Re: 2.5 Year Update
« Reply #7 on: April 27, 2026, 10:44:46 PM »
Hi Mark - you are right! I bought an extra pillow to relive pain plus I got a pillow with a hole in the middle for a while for that side (in the end I didnt really use it much). The elevation now with my extra pillow has made a bg difference- plus I got rid of my latex pillow as way too firm which increased the pressure. In fact CatGPT suggested the same- that the pressure from lying on firm pillow and less elevated was the cause. Have had no pain at all past two weeks!
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2021, 2022 - stable no change
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2024, 2025: No change in AN size or hearing status.

Mark F.

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Re: 2.5 Year Update
« Reply #8 on: April 28, 2026, 03:38:42 PM »
Michelle, Glad to hear you have been pain free.