ST. LOUIS, MISSOURI
LOCAL SUPPORT GROUP MEETING INVITATION
Please plan to join us at the next meeting of your local Acoustic Neuroma Support Group.
We welcome you to learn about the latest treatment options, to network with other
acoustic neuroma patients and find encouragement and support.
DATE/TIME:
Saturday, February 7, 2015
1:00 - 3:00 p.m.
MEETING LOCATION:
Mercy Medical Center (formerly SJMMC)
vonGontard Conference Center – dePazzi Bentley Room
615 S. New Ballas & just north of Conway Rd.
Creve Coeur, MO 63141
Phone: 314-251-6000
DIRECTIONS: Take I-64 to Ballas just east of I-270. Exit on Ballas and go north to entrance to medical office building parking lot or garage. Enter on the first floor of the conference center in the medical office building and follow signs. See enclosed campus map.
TOPICS:
● ANA Educational Webinar Recording and Group Discussion
Quality of Life Issues with an Acoustic Neuroma
Presented by Michael J. Link, MD, Mayo Clinic, Rochester, MN
This is a recorded video presentation with audio and slides from November 13, 2014.
The great majority of clinical scientific studies reporting the outcomes of patients with acoustic neuromas often focus exclusively on facial nerve outcomes and hearing results. However, there are many other aspects that may impact quality of life. In conjunction with colleagues in Bergen, Norway, Mayo Clinic has embarked on a large study of quality of life outcomes in patients with acoustic neuromas. This webinar will review how quality of life is measured and how the various treatment options impact quality of life including dizziness, headache, etc.
● Caring and Sharing
FOR ADDITIONAL INFORMATION OR TO RSVP, PLEASE CONTACT
YOUR LOCAL SUPPORT GROUP LEADERS/FACILITATORS:
Agnes Garino, Local Support Group Leader/Facilitator
Phyllis Trulock, Local Support Group Co-Leader/Co-Facilitator
The meeting will be facilitated by Agnes Garino and Phyllis Trulock, post-treatment acoustic neuroma patients.
Who should attend? Family members, caregivers, friends and interested persons are encouraged to attend.
Benefits of attending a local support group communicating in a nurturing, non-judgmental environment with others who have shared a common acoustic neuroma experience; sharing information on dealing with specific problems, educational opportunities about the latest acoustic neuroma topics of interest; and providing emotional support to all patients, both pre- and post-treatment. This helps in reducing the isolation and loneliness that many acoustic neuroma patients feel.
