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Author Topic: I'm back  (Read 2758 times)

catlover

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  • 13 days post-op. I still have my smile!
I'm back
« on: March 01, 2016, 12:05:18 pm »
Hello everyone!
I'm back! Unfortunately, I must say  :-[

I have no idea if some of you remember me...it was a very long time since I was here. It was back in 2009 when I removed my AN and everything went well. At the follow-up-MRI three years later everything was fine and no tumour, but now... I'm back with two small tumours, 1-2 mm and 3-4 mm and this time I'm going för radiosurgery GAMMA Knife. I live in Sweden so I'm going to Stockholm to get this done. I'm not very happy today because I got the call from the doctor today. I'm glad to here positive stories from you who have done GAMMA Knife radiosurgery.

Love to all of you,

Helene in Hässleholm, Sweden

I think I must change my phote...hmmm....it's from 2009
« Last Edit: March 01, 2016, 12:29:29 pm by catlover »
Logged
AN found in February, 2006, size 0,8 cm
Surgery 20th May, 2009, retrosigmoid approach
SSD and balance issues
Forever grateful to Dr Siesjo and Dr Kahlon, University Hospital of Lund, Sweden
Two AN:s found 1st March, 2016
Waiting for GK

CHD63

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Re: I'm back
« Reply #1 on: March 01, 2016, 02:09:15 pm »
Hi Helene .....

Of course I remember you!!  I thoroughly enjoyed you and your husband's posts!

So, so very sorry you are experiencing regrowth.  Not sure if you knew I also had regrowth.  In my case, radiation was not recommended because of radium treatments as a child, so I went through a second surgery.  I am fine now and I feel in my heart you will be too after completing gamma knife treatment.

So many thoughts and prayers.  Keep us up to date on how you are doing.

Clarice
Logged
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

catlover

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  • Posts: 100
  • 13 days post-op. I still have my smile!
Re: I'm back
« Reply #2 on: March 04, 2016, 07:06:20 pm »
Hi,
Thanks for wishing me welcome again! This time it will only be me posting, because my husband and I divorced one and a half year ago. I've been thinking about the GK and how long it will take until the AN stops growing and could they disappear entirely?
Hugs from Sweden
Logged
AN found in February, 2006, size 0,8 cm
Surgery 20th May, 2009, retrosigmoid approach
SSD and balance issues
Forever grateful to Dr Siesjo and Dr Kahlon, University Hospital of Lund, Sweden
Two AN:s found 1st March, 2016
Waiting for GK
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