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Author Topic: 15 month post GK  (Read 4709 times)

cathyroe

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15 month post GK
« on: November 10, 2015, 07:37:00 am »
 Hello ANer friends,
I just had my second MRI since GK in July of 2015. The little bugger is still growing!

The 6 month MRI showed growth from 1.4 x 8 to 1.6 x 8. I know, swelling...right. Now after my one year MRI (which is actually one year and 3 months, Dr. Lunsford told me to hold until October) it is even bigger at 1.7 x 1.1!

I have seen some people report growth here after 6 month MRI and chalk it up to swelling (which I also did) but has anyone here seen evidence of continued swelling 15 months post GK? Most people report stable or even shrinkage after a year.

Anyone?

Thanks,
Cathy
« Last Edit: November 10, 2015, 12:03:46 pm by cathyroe »
Logged
11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8

ANGuy

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Re: 15 month post GK and growing
« Reply #1 on: November 10, 2015, 10:27:13 am »
What did the Dr say, did he say it was growth?
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Diagnosed June 2014 1cm AN at 47 years of age.  Had fluctuating symptoms since 2006.    6 mos MRI (Dec 2014) showed no growth, MRI  in July 2015 showed no growth.  MRI Jan 2016 showed no growth.  MRI Aug 2016 showed no growth.  I'm gonna ride the WW train as long as I can.

cathyroe

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Re: 15 month post GK
« Reply #2 on: November 10, 2015, 12:03:26 pm »
Hi ANguy,
Nothing so far from the doctor. I just picked up my discs yesterday after the MRI and sent to Dr. Lundsford iat UPMC. I will hear from Dr. Lundsford soon, I hope!
I will trust what he says, he is the best qualified to read the MRIs. I'll stay calm until I hear back from him. Thanks again. Cathy
Logged
11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8

PaulW

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  • Posts: 772
Re: 15 month post GK and growing
« Reply #3 on: November 10, 2015, 12:06:56 pm »
For all we know all the swelling could have happened between month 6 and 7 and the tumour has been stable ever since. It's still early days. There is one person on this board who had a tumour that swelled for 4 1/2 years before it shrank.. Unusual yes, but it does happen.
I believe what is happening to your tumour is very typical.
Logged
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

cathyroe

  • Jr. Member
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  • Posts: 67
Re: 15 month post GK
« Reply #4 on: November 11, 2015, 10:27:02 am »
Thanks Paul,
You know how it is..... you can just worry yourself sick.
Cathy
Logged
11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8

Patti

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  • Posts: 361
Re: 15 month post GK
« Reply #5 on: December 14, 2015, 05:55:03 am »
Any updates to share?
Logged
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

mcrue

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  • Posts: 357
  • Greg Mech
    • gregmech26
Re: 15 month post GK
« Reply #6 on: January 10, 2016, 07:04:23 am »
Any updates cathyroe?
Logged
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan
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