Author Topic: Soundoff!!! Young with an acoustic neuroma?  (Read 8161 times)

Boppie

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Soundoff!!! Young with an acoustic neuroma?
« on: October 15, 2006, 09:53:49 pm »
Why don't you set up a thread of your own for "Young people" 

Laura

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #1 on: October 16, 2006, 07:44:10 am »
And how would you define young vs old? What about the peps inbetween?  ???
Diagnosed August 17, 2006
AN on right side 1cm x 7mm x 7mm
30% hearing loss with no other symptoms
Watching and Waiting
http://www.patient-network.com/lparr
It's mind over "matter"... even if the "matter" is in my mind

msuscottie

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #2 on: October 16, 2006, 08:40:24 am »
Yeah, I'm 31, but can I still call myself young?

stein78

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #3 on: October 16, 2006, 09:44:28 am »
I had AN surgery just before my 27th birthday.  :)
29 years old
2.5cm AN - left side
Removed May 10th, 2005
Dr. John Leonetti & Dr. Douglas Anderson
Loyola University Medical Center
Chicago, IL

Raydean

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #4 on: October 16, 2006, 12:47:04 pm »
I think what Taylor may be saying, is that at times, especially when there are many outcomes a person  can feel very much alone, even among a forum of people, (or a roomful of people)  The more complicated the situation, the more alone a person can feel.  It's so important to connect with someone that you can easily talk to, that shares the same interest and speaks the same language. 

Taylor, there's always a special place on this forum for you, but we do understand your desire to connect with others within your age range.  Hopefully you'll have time enough for both sites

Hugs
Raydean


Do not go where the path may lead, go instead where there is no path and leave a trail.

Sue

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #5 on: October 16, 2006, 01:16:30 pm »
I'm sure Taylor is thinking more along the lines of "Teens with AN's", or "Surviving AN's before the age of 25".  We already are classified as having a "rare disease", and it's much more rare with the people under the age of 30, so I think that's nice that Taylor wants to start something more specific for this age group. 

Sue
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
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chrissmom

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #6 on: October 17, 2006, 05:24:11 pm »
Let me assure you all....
The young people here have contacted each other.  They have already discussed the issues they have with each other. They contact each other by IM.  I told Chris about them and I know that he has already talked to both Taylor and Chelsea .  There are a few others out there too that he talks about. They still need us too.  No matter what they say .

Boppie

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #7 on: October 17, 2006, 07:18:15 pm »
If Taylor or Chelsea would just post a new topic and a link to direct other teens to their spot(s), new visitors would have the info.  This thread could vanish to allow for continuity.

Taylor

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #8 on: October 17, 2006, 08:46:07 pm »
i don't know what to do!! there is barely anyone with a teen AN! Ahhhhh!
Taylor
Translab/4.8 cm AN on right side removed 2/3/06
St. Louis Children's Hospital (next to Barnes-Jewish)/ Jeffery Leonard - Neurosurgeon
Cross-facial nerve graft with muscle transplant
Bad coordination on right side - constant pins-and-needles sensation on left side
21 years-old
Illinois

Sue

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Re: Soundoff!!! Young with an acoustic neuroma?
« Reply #9 on: October 18, 2006, 12:54:04 am »
Hi

Glad to know the kids have each other.  Maybe one of them could write to the ANA and have them put something into that monthly newsletter.  Maybe one of their staff would write an article about these kids and what they went through this year.  Maybe that would do something.  It's a thought.

Old Geezer Sue in Vancouver
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode