Author Topic: Just diagnosed  (Read 3367 times)

Tamarbm

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Just diagnosed
« on: August 14, 2015, 03:07:36 pm »
Hi,
I live in Israel and was diagnosed with AN 2 days ago.
I have a pretty big tumor (3.3 Cm X 2.4 Cm) which pushes and affects parts of the brain. As far as I understand I have to go through surgery in the next couple of months.
Israel is a small country with very good Neurosurgeons but there is not a lot of experience in this field.
I am willing to travel abroad but would like to go to the best and most experienced doctors there are.
I read a lot about House in LA and about Dr.Samii in Germany.
I would appreciate any recommendations you could give me from your experience.
Thank you.
   
« Last Edit: August 14, 2015, 03:11:54 pm by Tamarbm »

Tamarbm

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Re: Just diagnosed - I am almost there
« Reply #1 on: August 16, 2015, 08:50:00 am »
After reading this great forum (so lucky I found it) I am nearing my final decision for treatment.
As we are travelling all the way from the other side of the world, it comes down to 2 options now:
House in LA or MASS (with Barker and Mckenna).
I would really appreciate any feedback from some of you about your surgery experiences/outcomes so I can make the right decision.
I know both places are very good but if you could choose which one would it be ?


michellef08

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Re: Just diagnosed
« Reply #2 on: August 17, 2015, 08:26:41 am »
Hi Tamarbm,
I went to House and could not praise them enough! I had Dr. Schwartz and Dr. Friedman 2 years ago (before he moved to USC), and they were beyond amazing! My tumor was smaller (1.4cm) so I was eligible for the Middle Fossa approach, but they preserved my hearing and I had no balance or facial issues whatsoever! St. Vincent hospital (where they perform surgeries) is amazing as well. They see 2 AN patients a day multiple days a week, so they have the routine down! The doctors and nurses know exactly what to expect, and guide you through your recovery every step of the way.

I live in the DC area, so I also flew some distance to get there - not across the world, but at least across the country?

Hope this helps!
Diagnosed Dec 2012: AN 1.4 cm with mild hearing loss and tinnitus. Surgery: Middle Fossa at House with Schwartz/Friedman on April 10, 2013. Entire tumor removed, no facial issues, no balance issues, and they preserved my hearing!! Co-leader of the Washington, DC ANA support group since 2016.

mcrue

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Re: Just diagnosed
« Reply #3 on: August 17, 2015, 11:18:33 am »
Fantastic! I also have read a lot of excellent reports about House Clinic.
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan

Tamarbm

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House Clinic
« Reply #4 on: August 19, 2015, 10:19:18 am »
Thank you for your support and answers.
I chose the House Clinic and sent them all the information yesterday.
I picked Dr.Scwartz and Dr. Slattery.
And I am ready to travel to LA at the beginning of October.

mcrue

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Re: Just diagnosed
« Reply #5 on: August 19, 2015, 11:19:06 am »
I spent an hour on the phone with Dr. Schwartz a few weeks ago. The man is a genius. You are in excellent hands.

I think you made a fantastic selection with House Clinic and Dr. Schwartz.
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan