Author Topic: CK going back again after 8 years  (Read 8167 times)

chloes mema

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CK going back again after 8 years
« on: December 19, 2019, 02:39:42 pm »
Has anyone had CK done twice on the same AN?

May of 2012 I had CK (size was 12.5 mm), last week found out the results of my last MRI; growth of 1 1/2 mm.  Current MRI compared to my MRI in 2017 which was 11 mm now it's 12X13 mm. 

Also, being treated for Meniere's disease in my "good" ear which only has 68% word recognition. 

Very concerned about this second go around since I'll be recouping at home by myself.  I have started calling around to Visiting Angels and Home Instead for information.

Going in two weeks for first consultation with oncologist.  I really don't want to have this done again but the neurotologist said it's not going to stop growing or shrink on it's own.   :'(

I've been looking over my old posting to try to remember what it was like after CK, maybe that's not a good idea since I'm 8 years older and the body is much different now; SSD left, balance issues etc.  Doc said well at least you have all that so you don't need to worry about or get use to it.  (smart A)  :-X

Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

gbly

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Re: CK going back again after 8 years
« Reply #1 on: October 31, 2020, 09:31:48 pm »
Chloes mema,
I notice it has been awhile, but wanted to see what you decided and how it has turned out?
Thank you.
GB

chloes mema

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Re: CK going back again after 8 years
« Reply #2 on: April 06, 2021, 07:26:09 pm »
As it turned out another MRI showed that it had shrunk slightly so now I'm back on annual MRI's.
Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

TrueClarence

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Re: CK going back again after 8 years
« Reply #3 on: May 22, 2021, 12:30:54 am »
Chloes mema,
I'm curious - did the CK make any of your symptoms worse or did you already have the balance issues and SSD prior to CK? Glad to hear you didn't have to do a second round of CK.