Author Topic: Fast growing AN - successful treatment with GK?  (Read 4226 times)

sparrow

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Fast growing AN - successful treatment with GK?
« on: May 16, 2016, 05:40:39 pm »
I have a fast growing 1.8 cm acoustic neuroma.  It grows 3 to 4 mm per year.

I'd like to have GK but am concerned it might need surgery later. 

Has anyone had surgery after Gamma Knife? 

Has anyone had a fast growing AN successfully treated with GK?

Thank you!
« Last Edit: May 16, 2016, 05:51:10 pm by sparrow »

arizonajack

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Re: Fast growing AN - successful treatment with GK?
« Reply #1 on: May 17, 2016, 07:48:08 pm »

 Has anyone had surgery after Gamma Knife? 


I think several of our members have.


Has anyone had a fast growing AN successfully treated with GK?


Mine grew 20% in 6 months from my diagnosis. That was too fast for me and had GK 3 months later in Jan 2013. Last year's MRI at about the 2 year mark had no appreciable shrinkage but was stable. I'm hoping for shrinkage at my next MRI in September.

1.8 CM is still not too big for GK but I wouldn't wait any longer to get it taken care of one way or another.

3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

PaulW

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Re: Fast growing AN - successful treatment with GK?
« Reply #2 on: May 18, 2016, 02:27:57 am »
Faster growing tumours tend to have poorer success rates for both surgery and radiation...


10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

mcrue

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Re: Fast growing AN - successful treatment with GK?
« Reply #3 on: May 18, 2016, 02:45:55 am »

Faster growing tumours tend to have poorer success rates for both surgery and radiation...


Dr. Lunsford, the man who introduced the Gamma Knife to the USA, told me the exact opposite.

Dr. Jason Sheehan, a surgeon at the University of Virginia who was trained by Dr. Lunsford, also told me the exact opposite.

They both expressed to me that faster growing AN's respond better to GK.

Furthermore, Dr. Schwartz at the House Ear Clinic in Los Angeles also indicated (in my situation) that my fast-growing AN had no influence on the outcome of the success rate. The experience of the surgeon and team is what most influences the success rate, independent of the growth rate of the tumor.

At the end of the day, like many issues regarding AN's, it all depends which doctor you talk to.
Dr. Chang at Stanford was the only one whom I encountered that pointed me in the direction of microsurgery citing concerns of my fast-growing tumor and my suicidal tinnitus.


« Last Edit: May 18, 2016, 03:20:22 am by mcrue »
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan