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Author Topic: 15 year CK Follow up results  (Read 3487 times)

Mark

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15 year CK Follow up results
« on: June 09, 2016, 04:01:06 pm »
I rarely post anymore so I'm sure few on the board will know me, but I was treated with CK for a 2 cm right side AN in November 2001 at Stanford by Drs Chang and Gibbs. Since radiosurgery in general and CK specifically were new at the time, I committed that I would post updates to hopefully provide some long term baselines for people

Since I'm now on a 3 year interval these have been more sparse, but yesterday had my 15 year MRI, audiogram and review with Dr. Chang.

Tumor: continues to be stable and surprisingly display some additional shrinkage. after 2 years it was reduced to 1.5X 1.6X 1.6 and is now roughly 1.2X1.4X1.4

Facial nerve - no issues

Balance - no issues

Hearing- some continued deterioration across the mid to high frequencies. 19db drop since 2003, word recognition drop from 100 to 72%. This is to be expected given since, while dead , the scar tissue continues to sit on an already compromised hearing nerve, plus I'm 15 years older  ;). So, I'm probably finally ready to look at hearing aids to help in noisy environments, but I'm good with that. If I had done surgery with my size AN i most likely would have lost all hearing in 2001, so having usable hearing this long was a bonus.

Next follow up will be in 2019

best to everyone

Mark
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CK for a 2 cm AN with Dr. Chang/ Dr. Gibbs at Stanford
November 2001

SP

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Re: 15 year CK Follow up results
« Reply #1 on: June 09, 2016, 08:56:21 pm »
What great news Mark!!!!

Thank you for sharing - particularly on the impact to hearing, as I'm experiencing some hearing loss too and am approaching the 1 year mark post CK.

wishing you continued good health !

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My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

keithmac

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Re: 15 year CK Follow up results
« Reply #2 on: June 10, 2016, 01:22:44 pm »
That's heartening news, Mark.  Good luck for the future....   :)
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GaryWNT

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  • Ready for 1st MRI post CK . . .
Re: 15 year CK Follow up results
« Reply #3 on: June 10, 2016, 07:43:14 pm »
Thanks for the update, Mark, and congratulations on such positive results from your CK! I'm sure those of us who are much earlier in our journey hope that out outcomes are as positive as yours. Wishing you continued good health!
Gary
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Sudden hearing loss in left ear 02/15
MRI 07/15 showed 2.5cm AN
CK at Stanford (3 days) 11/16
No change in symptoms (Mild tinnitus, mild balance issues, moderate hearing loss)
1st follow up MRI coming 04/16
some evidence of central necrosis on the treated left acoustic neuroma 05/10/2016

sandyinwisconsin

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Re: 15 year CK Follow up results
« Reply #4 on: June 11, 2016, 05:08:37 am »
Thank you for the update. I go in August for my 3 year check up.
I had 26 treatments of low-dose radiation.
I hope to have the same results as you.

Sandy
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1 cm AN deep in the boney canal.  Treated with 26 treatments of radiation in December, 2013.  Please pray with me that this worked.

PaulW

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Re: 15 year CK Follow up results
« Reply #5 on: June 12, 2016, 11:31:27 pm »
Great news Mark. Congrats on the milestone.
One of the reasons I chose CK was to save my hearing.

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10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!
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