Old timer returns to the Forum (briefly)

[leapyrtwins]

Haven't been on the Forum in ages, I'm an old timer now (almost 10 years post op with no regrowth) doing well and living my life.  Still very happy with my choice of surgery (retrosigmoid) and my decision to get a BAHA implant (upgraded to a Cochlear BAHA 5 last year and it rocks).  Still think my docs, Robert Battista & Robert Kazan, are two of the very best. 

Have answered many PMs and emails from members since I've been off the Forum, so just want to encourage anyone who wants to contact me to feel free to do so.  Always happy to share my insights and my experience.

Best,

Jan

[andrea in slc]

Hi Jan

I remember seeing you on here when I was first diagnosed 8 years ago!  Guess that makes me an old timer too?  I'm glad you are doing well, it's so nice to hear with these darn tumors!

Unfortunately, I'm in the "lucky" 2% with regrowth, even after translab surgery. So I'm looking at optioms again. I did tell my husband we should go to Vegas because apparently "the odds are ever in my favor!"

Anybody know how Patti in UT is doing? I have lost her email.

Hope all continues to go well for you Jan!! 

[leapyrtwins]

Hi, Andrea.  I remember you, too - and yes, you are officially an old-timer 

I'm sorry to hear you're one of the "lucky" 2%.  In the past few years I've heard of several people who have had regrowth, although some of them originally had radiation not surgery. 

The last time I checked (had an MRI) was 4 1/2 years ago and at the time I was still "clean".  I'm due for an MRI @ my ten year ANniversary, so I'll know more then.

Don't have any contact info for Patti in UT, but there are several AN groups on Facebook.  Seems like the majority of us have migrated there; most people I met on this Forum haven't been here in ages. 

Good luck in Vegas; hope you win big 

Jan

[rupert]

I don't actually "make" trouble..........    Hahahahahahah   

[v357139]

Congratulations on your ten years!!! I remember reading many of your posts several years ago.  Keep magnifying trouble, I think its working.

[leapyrtwins]

I don't actually "make" trouble..........    Hahahahahahah   

I was given that quote by a fellow ANer - Tim Billings - because of my tendency to "hijack" threads (get off topic) and because of my interactions with my partner in crime on the forum, Lori Wilson.  Lori and I created the Official BAHA Recovery Kit and she's a close AN friend.  When I upgraded to my BAHA5 last year I gave her my BP100 since her device had issues, was no longer under warranty, and her insurance wouldn't cover a new one. 

At one point the Forum was our life, but life goes on.  The friendships have continued, thankfully, but the majority of us have no burning desire to still talk about our ANs.  As a result, most of us have since moved on to Facebook. 

But, I'm "lured" back here on occasion when someone sends me a PM and I decide to check out the posts.

Jan

[v357139]

Well it was glad to hear from you.  You were a long timer when I was just a newbie.  And you have a great story to tell, which the forum always needs.  All the best to you.

[sharonov]

Jan. you were very helpful to me during my last bout with trigeminal neuralgia in....2012?  I briefly considered going to Shahinian, then talked with Friedman, attended a conference, and then the trigeminal neuralgia went away!  In my blissful ignorance I thought it was a fluke.  When it returned in all its hideous splendor I went back here and decided to go to L.A. and have it done at the House Clinic by Schwartz.

Anyhow, glad you were there to talk with way back then.  Your twins must be young adults by now--I now have three grandkids.  Thanks again.

[jaylogs]

Jan!! How the heck are you doing?  It has indeed been a long time!  Glad to hear you've been doing well.  For the most part I've been doing ok.  I had so many issues with my implant, with the skin around it. FINALLY, after a third round of surgery we got it healed right up and now zero issues!  I've been dealing with a couple of other things, but nothing major.  Yes, it's been seven years now since my own wonderful journey into all of this.  Anyways, it was great to see you again, hope you've had a great holiday season and that the coming new year will treat you well!
Jay