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Author Topic: Newly diagnosed  (Read 5917 times)

alabamajane

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Re: Newly diagnosed
« Reply #15 on: April 17, 2017, 01:37:49 pm »
Regina,
Look into Vanderbilt in Nashville. They are an excellent center and used by several on here. Will be closer for you than CA.
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

SP

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Re: Newly diagnosed
« Reply #16 on: April 18, 2017, 12:36:03 am »
Hi Regina,

It's worth considering radiation as a possible option.
This coming August will be 2 years since I had Cyberknife treatment on a 3.2cm AN- so far so good.

Good luck with your ENT appointment.

My best,
Stella
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My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

SP

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Re: Newly diagnosed
« Reply #17 on: April 18, 2017, 12:40:38 am »
Hi SPX 600,

I had ear pain, (they gave me ear drops) and a gritty feeling in my left eye (they gave me eye drops) about 2 years prior to being properly diagnosed.

Best of luck with everything...

Stella
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My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

ColleenS

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Re: Newly diagnosed
« Reply #18 on: April 18, 2017, 07:17:20 am »
I also live in the southeast and my research directed me to Vanderbilt Medical Center - they do a high volume too. I will be having my surgery in a couple of weeks but so far I am very impressed by them. Maybe others who have had the surgery there can speak about them as well. I know Fl has some great options too...
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5/2/17 @ Vanderbilt Translab approach with Drs. Haynes & Chambless
Readmitted on 5/7/17 for CFL, lumbar drain; CFL repair surgery
10/18 5 Radiation treatments for tumor regrowth
3/19 Pain, swelling, facial paralysis
5/19 Facial paralysis, numbness
10/21 Mild facial paralysis still
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