finding a doctor

[icscfhn]

I have had an MRI for MS and a 2.5 cm AN was found. My neurologist referred me to a local ENT who cannot see me for another month. The local ENTs do not treat AN. Should I look for a consult with someone who specializes in AN or wait and go to the local ENT first?

[UkulelesAreAwesome]

My ENT referred me to a neurosurgeon and neurotologist. I also saw a gamma knife radiation oncologist. I chose gamma knife in 2022. I had a bit of a wait also. I was diagnosed with the AN in April 2022. I saw a neurosurgeon in June 2022. I did not want surgery so I was referred to a different neurosurgeon and gamma knife radiation oncologist in July 2022. The waiting period really felt like forever.

[DanFouratt]

Dear icscfhn,

I am not a doctor but my advice is find someone who is familiar with AN. In the library there is a presentation by the San Diego team about using high volume operation for surgery.  I did not have surgery but had a high volume Doctor ready. 

Good Luck on your Journey,

Dan

[DanFouratt]

The presentation was 3/4/24 by UCSD, worth the time.

Dan