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Author Topic: Interesting read today  (Read 1620 times)

mwatto

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Interesting read today
« on: March 07, 2023, 12:49:04 am »
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

donjehle

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Re: Interesting read today
« Reply #1 on: March 17, 2023, 05:37:36 pm »
That is an interesting read.  Thank you for sharing it, Michele!
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Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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Re: Interesting read today
« Reply #2 on: March 17, 2023, 07:56:30 pm »
Thanks Don! I read on most days to understand it better so I can choose supplements that might help. I have tried many over the years- now I just target neuro inflammation, fibrin/coagulation, overactive glial  etc. I collect articles such as Prof De Vries on the biology of VS. I do feel knowledge helps me cope with it.
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing
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