Author Topic: New contrast agent for MRIs -lower dose  (Read 1917 times)

mwatto

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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

judyette

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Re: New contrast agent for MRIs -lower dose
« Reply #1 on: June 18, 2023, 10:13:50 am »
Thank You so much for the link to this article Mwatto!!!  don't know how I missed it, till now!  I will research this more, and ask my AN doc about it at my upcoming July 12th appt.
judyette

mwatto

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Re: New contrast agent for MRIs -lower dose
« Reply #2 on: June 19, 2023, 03:48:28 am »
Sure thank you for responding. I am 4 years past and decline contrast (have said if anything flagged then sure) also I keep for emergency use if I have to have. My AN diagnosed no contrast tho I did need contrast for the CK. I just feel its pro inflammatory so why if its just to track progess.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

judyette

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  • Posts: 28
Re: New contrast agent for MRIs -lower dose
« Reply #3 on: July 20, 2023, 10:35:50 am »
I brought this up at my July 12th appt with AN doc.  He had never heard of it.  So I gave him the data notes I'd written up about it, stemming from your post.  He said he'd check it out, and see if it's available here.  The radiologist who interpreted my latest MRI scan stated that he couldn't tell much what was going on with it, and recommended a re-scan with contrast.  It's definitely still there, and we know from previous scans (with contrast) that it's growing into the cochlear aperture, but not sure I'm ready for another dose of gadolinium. 

mwatto

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Re: New contrast agent for MRIs -lower dose
« Reply #4 on: July 21, 2023, 08:05:35 pm »
It a tough one. When I had to have contrast I was well hydrated (I checked my renal sufficiency too before), I took a bit of NAD after. Mine is shrinking - I go to an excellent imaging facility and so far (4 years) managed to track without contrast- last one looked again at trigeminal nerve for me. Mine was first identified without contrast but I needed contrast for treatment.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing