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Author Topic: Hearing and Gamma knife affects  (Read 2810 times)

Moselle

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  • Posts: 24
Hearing and Gamma knife affects
« on: April 11, 2023, 10:37:43 am »
Has anyone got some hearing back after radiosurgery?
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PaulW

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Re: Hearing and Gamma knife affects
« Reply #1 on: January 29, 2024, 08:17:32 pm »
My hearing was bad, got worse immediately after CK, and then returned to normal after 5 months.
Has gone down hill from there but has been stable for the last 5.
I am 14 years Post CK

My low frequencies are normal, mid range down a bit, high frequencies are poor.

With a hearing aid a don't notice any real deficit in my AN ear
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10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

DanFouratt

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  • Posts: 134
Re: Hearing and Gamma knife affects
« Reply #2 on: January 30, 2024, 04:51:12 pm »
I had poor hearing going in to CK and it dropped to no hearing right after the procedure.  Four months out it has returned to where it was before CK.
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Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

donjehle

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Re: Hearing and Gamma knife affects
« Reply #3 on: February 04, 2024, 05:15:25 pm »
Thanks, Dan and Paul, for sharing your experiences on the Forums!
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Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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Re: Hearing and Gamma knife affects
« Reply #4 on: February 04, 2024, 07:16:13 pm »
% years post CK and having my annual audiology test tomorrow- last year showed no drop off. Am still around 90% that ear. However I have had Covid 9 months ago and RSV before that so will see - next MRI this week also.
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing
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