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Author Topic: Return from gamma knife  (Read 4827 times)

tony

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Return from gamma knife
« on: December 06, 2006, 08:37:28 am »
Just to say I am safely back from the gamma knife session
- no ill effects apart from my nerves
Interesting, the 10 yr follow up study from Hallamshire gamma knife
is about to be updated to 15yrs - not out yet
basically they are saying no major change than on the 10 yrs study
which is good news, methinks
I await the full report
Best regards
Tony
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HeadCase2

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Re: Return from gamma knife
« Reply #1 on: December 06, 2006, 08:48:30 am »
Tony,
  Glad to hear you have finished the treatment with no ill affects.  Your "nerves" can now begin to return to normal.  The nervousness is one of the most difficult parts of getting treament for AN.  No matter how much you read about possible treatment affects, on an emotional level you're allowing someone to mess with your brain and that's a little scary.  Now that it's over, you can begin to get on with your life.  Congratualations.
Regards,
 Rob
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1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

Palace

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Re: Return from gamma knife
« Reply #2 on: December 06, 2006, 09:16:50 am »
 :)

Congratulations!  That is fabulous.  I'm at my fifth day out, mark.  I was taken back at the long "build-up" and more than exhaustion I'm experiencing from CK.  I hope you don't go through the big *let-down* of the body change/mind-set and exhaustion from stress and everything.  You sound good.  Thank you for letting us know.  Keep us posted and I still didn't have to take my steroid pill and I think I'm going to slide by without major swelling. 



Good luck,



Palace
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22 mm Acoustic Neuroma (right side)
Cyberknife, Nov. & Dec. 2006
Dr. Iris Gibbs & Dr. Blevins @ Stanford
single sided deafness

ppearl214

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Re: Return from gamma knife
« Reply #3 on: December 06, 2006, 09:23:28 am »
Congrats Tony! Thrilled your session is now complete. Please make sure you get your rest (you know the fatigue factor) and onward to wellness!

Thrilled for you!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Dealy

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Re: Return from gamma knife
« Reply #4 on: December 06, 2006, 11:26:12 am »
Congrats Tony from another NF2. I had not realized you were taking the plunge so called I guess. Here is hoping that GK does the trick for you also. I am nearing my 6 month MRI in last week of December. Feels like its still doing something in my head. I have the same symptoms I did when this all started almost 2 years ago-so I hoping that is a result from swelling. MY hearing is not very good though. It sounds like I am on the wrong radio station and if you could just turn the dial it would become clearer. Went to my ENt and Audiologist said that they may look at one hearing aid to clarify sounds in my only hearing ear. Well you are the one that can prove the literature wrong. Most articles I read that said GK was too intrusive on the hearing nerve. Good Luck-Well actually you need more than luck like the rest of us. Here is wishing you well. Ron
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Derek

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Re: Return from gamma knife
« Reply #5 on: December 06, 2006, 06:29:11 pm »
Hi Tony...

I am delighted that your GK treatment session at Sheffield appears to have went so well for you. I do hope that the eventual full report contains continuing good news. Well  done Tony and very best wishes to you.

Regards

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

Obita

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Re: Return from gamma knife
« Reply #6 on: December 07, 2006, 06:54:51 am »
Tony:

Congrats on being done with it...........

Kathy
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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Brendalu

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Re: Return from gamma knife
« Reply #7 on: December 07, 2006, 07:44:33 am »
Tony,
Congratulations on being done with it!  Now rest and take care and we will all pray for the best results.
Best wishes,
BrendaO
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

vjharris

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Re: Return from gamma knife
« Reply #8 on: December 07, 2006, 11:08:29 am »
Tony,
I hope you are feeling even better now that your Gamma Knife treatment is over. I am hoping for no bad side effects and lots of tumor shrinkage for you!
vjh
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2.2x2.37 right side meningioma or acoustic neuroma
Gamma Knife Dec 5, 2006

Patti UT

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Re: Return from gamma knife
« Reply #9 on: December 07, 2006, 01:25:07 pm »
Wonderful news Tony.  Gald it's behind you now. Take care and get some rest

Patti UT
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2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

lmurray69

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Re: Return from gamma knife
« Reply #10 on: December 07, 2006, 06:31:33 pm »
I am so happy for you..glad that it all went well Linda
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radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

tony

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Re: Return from gamma knife
« Reply #11 on: December 09, 2006, 01:19:59 am »
Thank you for all your wishes - at the moment all I have is slight cold/flu-
like-symptoms - if this is as bad as it gets I shall be well pleased
best regards
tony
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