Stroke or Vestibular symptom?

[RobinKeener]

I was walking to my car, dizzy in my head, as usual, and I started having a strange sensation as if a force was trying to push me down. I slowly made my way to the car and was unable to get my arm to move to open the door, then my legs collapse and I fell to the ground.  My husband had to pick me up to get me in the car, went straight to ER ( we live in a very rural town in Arkansas) so they started treating me as a stroke patient. I told them all about the tumor and that my symptoms may be related to the tumor...although never any thing like this. Anyway after several cat scans and an MRI
that all came back negative for any cranial bleeds, they administered the clot buster drug TNKase. I must note, I couldn’t lift my legs and was having a very difficult time moving.  Ended up being transported to Little Rock where I was monitored  had more scans that revealed nothing other than my VS.  Home now, and am having similar symptoms just not as severe although I have fallen several times since home and having that crazy feeling of a force pushing my head down.  I was actually going to have GK next week and now it is postponed.  My VS team is in Houston and I’m waiting to meet with them regarding the event.  Anyone ever experience this? It was so scary, I thought it was best to take the clot buster, better to be safe than sorry. 

Thanks, a dizzy blonde from Texas living in Arkansas heaven.

Diagnosed: 8/2023
VS: 7.3 mm x 7.5
Treatment: waiting for Gamma knife surgery 

[donjehle]

Hi RobinKeener!

Thanks for posting your experience on the ANA forums.  While I had severe dizziness and had fallen, I was always able to move my arm.  But one thing I have learned about acoustic neuromas is that not everyone's experience is the same.  I hope you can report what your VS team in Texas has to say about your experience.  I think it would be helpful to everyone in this community.

Thanks for sharing and best wishes on your GK treatment!
Don

[DanFouratt]

I am not sure how to advise you.  I had heart surgery (open heart) 6 months after my CK treatment for the VS.  I am asked by both doctors about dizziness.  My come back is if I do have dizziness are you going to take credit or blame the other guy? There was no good answer. It is a symptom of both medical issues and I am sure a few others.  I am not an doctor and cannot really say what you should do. Did you or your team postpone the CK treatment? Let me know what they say when you meet with them.


Good Luck on your journey,

Dan