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Author Topic: Headed for CK  (Read 3192 times)

goinbatty

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Headed for CK
« on: January 04, 2008, 08:10:48 pm »
Well after a year of worry and loads of research, I'm finally headed to DC for CK.  Will keep you all updated.  Wish me luck!!
Sandra
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1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change

nancyann

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Re: Headed for CK
« Reply #1 on: January 04, 2008, 08:17:07 pm »
Putting 'good thoughts' out to the universe for you Sandra.    & to that nasty tumor, "burn baby burn!!"
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Sheryl

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Re: Headed for CK
« Reply #2 on: January 04, 2008, 08:53:03 pm »
Sandra - the worst part is getting to that decision.  My husband took nine months to decide and I kept teasing him that I could have had a baby in that time!!  Of course at 61, I'd hope it was a grandbaby.  Good luck - keep us posted.
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

sgerrard

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Re: Headed for CK
« Reply #3 on: January 04, 2008, 10:22:41 pm »
Hey Sandra, good luck with the CK. It will be a breeze. One more AN bites the dust.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Detlef

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Re: Headed for CK
« Reply #4 on: January 08, 2008, 01:15:28 pm »
Hey Sandra:
Thinking about you today (you start CK today)--hope all goes well and stress-free. 

I'm doing well (no side effects).  Glad to report that...

Let us know how it goes.

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Detlef 
6July07 (42-years old) -- MRI diagosed 1.9 cm AN spherical -- 94% Speech Discrimination
5Nov07 -- CK treatment  (5Gy x 5days)--Georgetown University Hospital (no problems)
08Jan08 -- No complications so far

Richey

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Re: Headed for CK
« Reply #5 on: January 09, 2008, 08:30:48 am »
Hey, Sandra

Hope you have smooth sailing with the CK, I think you got your wish for good weather

I am having my one year MRI today

Hope to see you at the next support meeting

Rich
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candtlaw

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Re: Headed for CK
« Reply #6 on: January 11, 2008, 01:36:19 pm »
Thinking of you and I hope that all has gone well with your CK and your AN..... toast baby, its gonna be toast! :)
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Cyndi
post CK for AN 1cm 04/30/07


Loving my life today :)

pearchica

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Re: Headed for CK
« Reply #7 on: January 31, 2008, 02:47:23 pm »
All our thoughts and prayers are with you- take care, good luck- Annie
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Annie MMM MY Shwannoma (sung to the son My Sharona by the Knack-1979)
I have a TUMAH (Arnold Schwarzenegger accent) 2.4 x 2.2 x 1.9CM. CK Treatment 2/7-2/9/07, Stanford- Dr. Stephen Chang, Dr. Scott Soltys
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