Author Topic: Treatment Decided  (Read 2301 times)

hendi51

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Treatment Decided
« on: November 24, 2009, 01:09:43 pm »
I haven't posted on the forum in a long time but I have been reading about all of you. My husband Lynn, is the one with the tumor and we have been in the watch and wait mode since May of 2007. Due to a growth spurt of 5 millimeter in a six month period he will be having the gamma knife radiation at the Methodist hopital in Memphis, Tn. The date hasn't been set yet but the neurosurgeon said probably between now and Christmas. We are very happy to finally be getting treatment. This isn't the treatment Lynn wanted, he wanted the tumor out of his head, but due to other health issues the surgery isn't an option.
My husband had translab 3/15/2011 for 1.5 cm x 1.5 cm left side AN at
Methodist University Hospital in
Memphis, Tn

CHD63

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Re: Treatment Decided
« Reply #1 on: November 24, 2009, 01:58:20 pm »
It has to be a relief to finally have the decision made to go on to treatment.  I would not have been a good "wait and watcher."  Sorry he is having other health issues but at least you can move forward with stopping the pesky AN in its tracks.

Thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: Treatment Decided
« Reply #2 on: November 24, 2009, 02:15:24 pm »
Hendi -

GK is a very good option - my doc does it, in addition to surgery, and I seriously considered it myself.  I don't know what Lynn's other health problems are, but radiation is obviously less invasive than surgery and the recovery time will be much shorter.

I'm confident everything will work out well for him. 

Please return to the forum to let us know how things work out for Lynn.  He - and you - will be in our thoughts and prayers.

Best,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mickey

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Re: Treatment Decided
« Reply #3 on: November 24, 2009, 02:52:00 pm »
Best Wishes and a speedy recovery! Mickey

Jim Scott

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Re: Treatment Decided
« Reply #4 on: November 24, 2009, 04:04:43 pm »
hendi51 ~

Thanks for the update on your husband's decision to have the Gamma Knife treatment next month.  Although I'm sorry Lynn cannot have the surgery he would have preferred, GK is time-tested and usually has good results.  Well be looking for the GK date and of course, thinking of and praying for both you and Lynn as you go through this, together.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

nteeman

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Re: Treatment Decided
« Reply #5 on: November 24, 2009, 07:05:26 pm »
Wishing Lynn the best outcome,

Neal
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

hendi51

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Re: Treatment Decided
« Reply #6 on: November 25, 2009, 09:09:49 am »
Thanks everyone. Lynn's other health issues are heart problems, he has had a heart attack and is have problems with stable angina and emphyzema. His cardiologist said he was a high risk for surgery so gamma knife it is.
My husband had translab 3/15/2011 for 1.5 cm x 1.5 cm left side AN at
Methodist University Hospital in
Memphis, Tn

ncutt

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Re: Treatment Decided
« Reply #7 on: November 26, 2009, 12:25:43 am »
Wishing for a good outcome for you and Lynn.

ghenier27

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Re: Treatment Decided
« Reply #8 on: November 28, 2009, 03:52:53 pm »
Thinking back, I think that was the hardest decision I had ever made in my life. But once it was over, I felt the weight of the world was off my shoulders. It makes the treatment alot easier to handle. I will keep you in our prayers. Debi

suboo73

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Re: Treatment Decided
« Reply #9 on: November 29, 2009, 06:17:54 am »
Hendi, 

Best wishes to you and Lynn on the treatment decision.
My thoughts and prayers go out to you and your extended family for a successful and uneventful treatment/recovery.

Sincerely,
Sue
suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

moe

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Re: Treatment Decided
« Reply #10 on: November 29, 2009, 10:32:56 am »
Hendi,
Gamma Knife it is then! He will be glad to at least have it taken care of, though the AN will still be hanging around, shriveling up etc.
Brain surgery is a  big deal, his recovery will be so easy. Lots going on this Dec. You are all in my prayers.
Take care,
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

sgerrard

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Re: Treatment Decided
« Reply #11 on: November 29, 2009, 01:30:58 pm »
Hi Hendi,

Best wishes to Lynn for his treatment. Nothing is ever certain in the world of ANs, but there is a good chance that GK will take care of the AN for him and cause him no further trouble. We will be pulling for him.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

wcrimi

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Re: Treatment Decided
« Reply #12 on: November 29, 2009, 06:51:49 pm »
All the best. Wayne
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move