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Author Topic: Lots of Ear Pain  (Read 3122 times)

Melissa778

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Lots of Ear Pain
« on: March 11, 2008, 11:42:06 am »
 I notice my hearing getting a bit worse in my AN ear.....I'm just feeling a bit more "plugged" in that ear than normal.  Is it normal to have pain in the AN ear as well???  I've been having some serious pain on that side of my head and ear the last week or so.

Melissa
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1.6cm X 1.6cm diagnosed Jan 30 2008
Translab Surgery scheduled for May 15th with Surgery went well, got ALMOST all of it.
GK to zap the rest on 10/22/08
2010 MRI showed no new growth tumor measuring at that time at 1.1 x .4
2011 Holding steady
2012 new growth 1.7 x .7 :( :(

Jim Scott

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Re: Lots of Ear Pain
« Reply #1 on: March 11, 2008, 01:43:28 pm »
Hi, Melissa:

Frankly, with an acoustic neuroma, there really isn't a normative condition.  However, a sensation of ear 'blockage' is not at all uncommon.  Ear pain - in varying degrees - is also familiar, although it usually isn't really 'in' the ear but radiates from the vestibular-cochlear ('8th') nerve that is being pressed by the AN.  This kind of pain and discomfort is what often motivates AN patients to move ahead with surgery or radiation (or both).  I trust your pain and discomfort will be alleviated, soon.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

matti

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Re: Lots of Ear Pain
« Reply #2 on: March 11, 2008, 08:32:40 pm »
Hi Melissa  - 8 months or so prior to my AN diagnosis, I would get the most excrutiating, stabbing ear pain that would literally stop me in my tracks. It would last anywhere from 30 seconds to 5 minutes. These attacks occured every couple of weeks. More often though, I would experience what felt like a constant ear ache and pressure. Very similar to the ear pain/pressure when flying.

It's certainly worth mentioning to your doctor.

Hugs,
cheryl

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3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
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mema

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Re: Lots of Ear Pain
« Reply #3 on: March 13, 2008, 09:28:03 am »
Hi Melissa,


I get ear pain of and on in both ears.  Sometimes a loud noise causes it. If I ride a bike it causes it. If I were to wear earplugs it causes an earache.  Someone else said sort of like airplane pressure.  This started to occur about 18 months post radiation treatment.  I don't wear earplugs anymore only earmuffs which  seems pretty funny to my neighbors, since I live in Florida.  But they do the trick.



mema
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6mm x 8mm left AN FSR 26 treatments Nov.-Dec.2005
MD Anderson Orlando, Fl.

Esperanza

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Re: Lots of Ear Pain
« Reply #4 on: March 13, 2008, 11:24:54 am »
Hi Melissa,

I have over the last couple of weeks had increased fullness, ache and worse tinnitus.  Sometimes feel like something is 'hooked' in there.  Local ENT guy still insisting it's all in my head - well I have news for him - IT IS!   ::)
Why do some specialists insist these things are nothing to do with the AN? 

x

« Last Edit: March 13, 2008, 11:30:54 am by Esperanza »
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Profoundly deaf suddenly on AN side with vertigo January 3rd 2008.
12mm left side AN diagnosed 20th Jan. 2008.  MRI  in July shows no growth. What do I do now?????

BDB

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Re: Lots of Ear Pain
« Reply #5 on: March 13, 2008, 01:09:28 pm »
Esperenza, Don't let the docs get you down,mine told me I wasn't having the symptoms I was having.Just ask him if he would like to exchange heads for a day,so he can feel your imagination!Hang in there!
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1.2 cm an rt.side CK MAR.08

danijake

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Re: Lots of Ear Pain
« Reply #6 on: April 05, 2008, 04:18:56 pm »
Good one BDB!!
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