Author Topic: CK starting today!!  (Read 7578 times)

leapyrtwins

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Re: CK starting today!!
« Reply #15 on: April 17, 2008, 06:00:54 am »
Treatment day #2 already - boy, that was fast.  They don't mess around with this CK stuff do they?

Good luck Anna, when treatment #2 is over you'll be almost half way there. Yea!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Anna7

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Re: CK starting today!!
« Reply #16 on: April 17, 2008, 11:17:52 am »
Yeah, can't wait to get clamped to that comfortable table again! ;)  I tried to make it through the entire session last time but finally had to ask the physicist to stop so I could rub the back of my head.

Has anyone else out there experienced any immediate side effects that they wouldn't mind sharing?
Yesterday I experienced:

1) waves of dizziness (not spinning but definite wooziness with certain movements or just turning my eyes downward)
2) ache behind my ear and down side of my neck
3) pain deep inside my ear (not unbearable or sharp though)
4) headache (not splitting but there)
5) metallic taste in mouth

Just trying to figure out if these symptoms are universal to some degree.

Anna

jb

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Re: CK starting today!!
« Reply #17 on: April 17, 2008, 02:13:12 pm »
Anna,
A little late wishing you good luck, but sounds like you're doing great!  I think everything you mention sounds pretty normal.  I didn't have a metallic taste, but maybe a little numbness/dry sensation on my tongue.  I think some of the head/neck aches come from being immobilized during treatment.  Hang in there.... you'll be on the downhill after the next one!

2 cm right-side AN, diagnosed July 2006
Cyberknife at Georgetown Univ. Hospital, Aug 2007
Swelled to 2.5 cm and darkened thru center on latest MRI's, Dec 2007 and Mar 2008
Shrinking! back to 2 cm, Aug 2008
Still shrinking (a little), I think about 1.7 cm now, Aug 2009

MaryBKAriz

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Re: CK starting today!!
« Reply #18 on: April 17, 2008, 02:23:52 pm »
Still cheering you on, Anna.

Thank you for your info, too! Hope this will soon be a faint memory.

Since I have not gone through treatment, I do not know what is common and what is not. Have you asked your physicist/physicians? I would be curious to hear what they say.

Take care and you go girl!!!!!!!! Yea ANNA!!!!!!!!!!!!!!!!!!!!!
Diagnosed March 24, 2008, 1.1cm, right side, "Goldie" - small but mighty!! :-(
Hearing, lottsa balance problems and a few facial twitches before CK
CK June 2, 2008, BNI in PHX, Drs Daspit/Kresl, side effects,steroids helped. Getting "sea legs".
Apr 2012 - Still glad I chose CK

goinbatty

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Re: CK starting today!!
« Reply #19 on: April 17, 2008, 07:15:50 pm »
Hi Anna,
I'm joining in a little late but wanted to wish you well.  It will all be over before you know it.  Meant to tell you that I didn't have steroids with CK either.  Doing fine so far. 
Take care,
Sandra
1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change