Author Topic: Need HELP!!! New to this forum!!!  (Read 2892 times)

Shiva

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Need HELP!!! New to this forum!!!
« on: April 06, 2008, 07:11:36 am »
Hello, My name is Shiva (basically from India) currently living in Maryland. My mom (Aged 65) had a gradual hearing loss in the last 3 yr medical history and last Nov'07 when hearing test was done, she had total 100% hearing loss on her left ear. Right ear is fine. Doctors in India confirmed this as a Menierie's disease and she should be okay with one ear (no life threating). I got her to US on a visitor visa for second opinion (with no insurance) and took her to an ENT specialist and he recommended to do an MRI. We did MRI (with/without contrast) last week and I found she has acoustic neuroma. This is what the result says (sorry for putting the long result). I have an appointment with my ENT only on 04/21/08 to discuss abt the results and so thought to have some discussions in this forum. Any suggestions/help would be really appreciated.

TECHNIQUE :  The examination was performed with and without the intravenous administration of 15ml of OptiMARK contrast.
 
FINDINGS : There is a Large left cerebellopontine angle mass extending into the left internal auditory canal and widening the left porous acousticus, with dense enhancement, measuring 16mm AP by 22mm ML by 16mm CC, representing a left vestibular neurinoma. There is minor mass effect. The right cerebellopontine angle is clear.
 
Normal Cerebral hemispheres, with normal cortical gray matter and white matter tracts. There are mild white matter hyperintensitles supratentorially likely representing chronic ischemic change.
 
Normal Ventricles, without alteration in size of morphology.
 
Normal corpus callosum, with a normally developed rostrum, genu, body and splenium.
 
Normal septum pellucidum.
 
There is no extraaxial mass lesion, or fluid accumulation.
 
Normal bilateral basal ganglla, thalami, and internal and external capsules.

Normal sella turcica, pituitary gland, infundibular stalk, optic chiasma and hypothalamus.

Normal visualized bilateral cavernous sinuses.
 
Normal suprasellar, interpeduncular, and pre-pontine cisterns.
 
Normal enhancement of the dural sinuses and cortical veins. There is no enhancing supratentorial intra-axial or extra-axial mass lesion, or vascular malformation.
 
Normal midbrain, pons and medulla, without signal or morphologic alteration. Normal tectal plate. There is no enhancing abnormality of the brainstem.
 
Normal vermis and cerebellar hemispheres, without tonsillar ectopia. There is no enhancing abnormality of the cerebellum.
 
Normal flow within the carotid and vertebral arteries, without a demonstrated aneurysm or occlusion of the Circle of Wlllls.
 
Normal bilateral temporal bones, with normal bilateral internal auditory canals (IACs), mastoid air cells, and petrous apices. There is no enhancing abnormality of the cisternal or intracanicular portions of the bilateral 7th or 8th cranial nerves. There is no demonstrated fluid within the tympanic cavities. Normal visualized bilateral vestibula and cochlea.
 
Normal bilateral Meckel's cave.
 
Normal bilateral orbital contents, with nornal visualized bilateral intraconal and extraconal spaces, extra-ocular muscles and optic nerve sheath complexes.
 
Normal visualized paranasala sinuses, without demonstrated mucosal inflammatory process.
 
Normal clivus, without a destructive process.
 
Normal foramen magnum, with CSF surrounding the brainstem-cervical cord junction.
 
Normal anterior atlantoaxial articulation of the cervical spine.
 
Normal visualized central osseous skull base, without a destructive process.
 
Normal visualized soft tissue structures of the suprahyoid neck, at the craniocervical junction.
 
Normal visualized posterior nasopharynx, without a demonstrated adenoidal pad hypertrophy, retention cyst, or mass lesion.
 
Normal osseous calvarium, without an osseous destructive lesion.
 
Normal subcutaneous adipose space of the calvarium, without a demonstrated soft tissue mass lesion.
 
IMPRESSION : Large left probable vestibular neurinoma with minor mass effect.
 
Minor probable chronic ischemic changes.
 
Otherwise, normal MR of the brain without and with contrast. Specifically, no hemorrhage, additional mass or mass effect or infarction.
 

My Question :

1) Considering her age, what is the best approach? Surgery, radiotherapy?
2) Is this size life threating? Is she going to get affected in the facial nerve sooner? Since we did not take any MRI before, we do not know the growth rate...
3) Since no pre-existing conditions are covered by insurance (vistor insurance) is there any organization/charity to help us OR should we consider to get treatment in India?

I LOVE MY MOM so much and Iam the only child to her. I didn't share her MRI results with any  of our family members (even my dad doesn't know).  I don't know what to do. Pls. any HELP/ADVICE/SUGGESTIONS would be really appreciated.  Thanks a lot. I want to save my mom.

Regards,
Shiva
For my mom Aged 65 (31-Jan-1943)
First MRI 02-Apr-2008, 16mm AP x 22mm ML x 16mm CC (about 2.2cm), Left ear deafness
LINAC (XKnife) - 04-Jun-2008, Apollo Speciality Hospital Chennai, India with Dr.L.Murugan (Neurosurgeon) & Dr.Ratnadevi (Radiologist).

nancyann

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Re: Need HELP!!! New to this forum!!!
« Reply #1 on: April 06, 2008, 07:21:27 am »
Hello Shiva, nice to meet you.   Well, personally (& this is biased),
if it were my mother I would get an appt. with a dr. specializing in Cyber or Gamma Knife radiosrugery.
The doctor will make his/her decision based on the MRI findings.
Also,  hospitals should have staff that can help with assistance with payment.
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
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Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Kate B

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Re: Need HELP!!! New to this forum!!!
« Reply #2 on: April 06, 2008, 07:25:24 am »
Hello Shiva,

Welcome to the forum.  This is a supportive group.

First and foremost, this is not a life threatening condition. An acoustic Neuroma is a benign condition.
It sounds like her AN is about 2.2 cm which the report calls large.

Yes, a diagnosis is a shock especially when words like "tumor" and "mass" are used. It seems like you don't want to "worry" your mom or dad in your post.  Knowing that it is benign will make it easier to share.  Others on this forum are researching for their parents too and may offer you the way they shared information. 

Her age is a consideration for treatment options.  There is no one right way to treat it, and when you speak to the doctors ask questions. You need to find out the location of the tumor. If it is pressing on the brainstem, it presents different challenges.  Her report is rather lengthy and I am not a physician, but it doesn't appear to be touching the brainstem. Take your time to study her options and line them up with the size,location, her hearing level, etc...

Here is a link that you may find useful when you go to the doctor. I found it absolutely necessary to come in prepared with a list of questions to ask the doctor. Otherwise the doctors say what they want to say and are out of the room before you have a chance to digest what they have said and then to gather your thoughts enough to ask intelligent questions.The beauty of it is that you can print it out as many times as is necessary and there is a space for you to write notes.
http://anworld.com/questions/


Kate
« Last Edit: April 06, 2008, 07:41:13 am by Kate B »
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

Shiva

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Re: Need HELP!!! New to this forum!!!
« Reply #3 on: April 06, 2008, 08:14:18 am »
Thanks & nice to meet you nancyann & Kate.  I'll definitely take up these questions to my doctor.
For my mom Aged 65 (31-Jan-1943)
First MRI 02-Apr-2008, 16mm AP x 22mm ML x 16mm CC (about 2.2cm), Left ear deafness
LINAC (XKnife) - 04-Jun-2008, Apollo Speciality Hospital Chennai, India with Dr.L.Murugan (Neurosurgeon) & Dr.Ratnadevi (Radiologist).

Yvette

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Re: Need HELP!!! New to this forum!!!
« Reply #4 on: April 29, 2008, 08:42:03 pm »
Hi Shiva, and welcome. You have some time, nothing must be decided immediately, so though it is very hard, try to be at peace. After you get MRI results you'll have more with which to make an informed decision. Your mother is very lucky to have you doing so much for her. If you decide to tell your father so you can share the responsibility for your mother's medical decisions, some ANers tell people that they have "a growth" on an audio nerve. This sounds less scary than saying "tumor." Keep us posted; we are here for you!

Yvette
3cm translab Jan. 2007 performed at Mayo Clinic MN. by Drs. Link and Driscoll. SSD but doing great!