Author Topic: Laura's June 27 appointment  (Read 2533 times)

lholl36233

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Laura's June 27 appointment
« on: June 24, 2008, 12:54:58 pm »
Has been changed to July 11.  I had no choice.  It is going to drive me crazy waiting but my father died suddenly and the funeral is Friday.
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

leapyrtwins

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Re: Laura's June 27 appointment
« Reply #1 on: June 24, 2008, 12:57:27 pm »
Laura -

I am so sorry to hear that your father passed away  :(

My sympathies,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Laura's June 27 appointment
« Reply #2 on: June 24, 2008, 01:14:01 pm »
Laura,

I'm so sorry about your father.  I just lost my Dad 3 weeks ago and it's not easy.

I hope you'll be able to get some relaxation in before your new appointment.  I know this week is probably going to be stressful, but hopefully you can focus on YOU for a little bit after you get through this week.

You and your family will be in my prayers!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

lholl36233

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Re: Laura's June 27 appointment
« Reply #3 on: June 24, 2008, 01:32:26 pm »
Jan & Lori,

You both are so nice.  As usual, your support is greatly appreciated.

Laura
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

Debbi

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Re: Laura's June 27 appointment
« Reply #4 on: June 24, 2008, 03:54:39 pm »
Laura-

I echo Jan and Lori - so very sorry for your loss.  My sympathies.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Pooter

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Re: Laura's June 27 appointment
« Reply #5 on: June 24, 2008, 07:17:23 pm »
Yes, sorry to hear about your father.  Try and get some rest between now and then.  May peace come to you during this time..

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Nicole222

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Re: Laura's June 27 appointment
« Reply #6 on: June 25, 2008, 07:54:30 am »
I'm so sorry to hear about your dad :(

Like the say----when it rains............

Sending thoughts and prayers your way.

Take Care, Nicole
Had surgery (retrosigmoid) May 9th, 2008 to remove a 3.5cm AN from left side.
Home one week later, no facial nerve damage. 
SSD -Left ear.
Thankful daily for fantastic surgeons and wonderful family and friends.
34 years old.  Married mommy to Jordan, 23 months.

Denisex2boys

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Re: Laura's June 27 appointment
« Reply #7 on: June 25, 2008, 08:13:30 am »
((((HUGS))))
- Oct. 16/08 - 12 hour 'blob-ectomy' at LHSC in London, ON - Dr. Lownie and Parnes
- Some internal facial numbness (cheek, tongue, eye), SSD, headaches (getting better), dry eye, some balance issues..... but othwise AWESOME!

er

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Re: Laura's June 27 appointment
« Reply #8 on: June 25, 2008, 09:18:16 am »
I am so sorry for your loss.
eve

Jim Scott

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Re: Laura's June 27 appointment
« Reply #9 on: June 25, 2008, 11:02:55 am »
Laura:

Please accept my condolences for the loss of your father and my hope that you'll be able to find some moments of tranquility in the weeks ahead.

Please try to remain strong in the knowledge that you'll be in the thoughts and prayers of many caring people as you cope with the funeral and later, as you prepare for your appointment. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Shiva

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Re: Laura's June 27 appointment
« Reply #10 on: June 25, 2008, 03:06:50 pm »
Laura,

Iam so sorry for loss of ur dad. Don't worry..things will get back to normal and Best wishes for ur July 11th appnt.
For my mom Aged 65 (31-Jan-1943)
First MRI 02-Apr-2008, 16mm AP x 22mm ML x 16mm CC (about 2.2cm), Left ear deafness
LINAC (XKnife) - 04-Jun-2008, Apollo Speciality Hospital Chennai, India with Dr.L.Murugan (Neurosurgeon) & Dr.Ratnadevi (Radiologist).

wendysig

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Re: Laura's June 27 appointment
« Reply #11 on: June 26, 2008, 06:48:25 am »
Laura,

I'm so very sorry for your loss.

Wendy

1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Sammict

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Re: Laura's June 27 appointment
« Reply #12 on: June 26, 2008, 08:59:48 am »
Hi Laura

I am very sorry to hear about your father. Best wishes in your upcoming surgery.

Sam

Syl

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Re: Laura's June 27 appointment
« Reply #13 on: June 26, 2008, 05:22:46 pm »
Laura,

Hope you are doing well. The loss of a loved one is never easy. My thoughts and prayers for you and your family during this difficlult time. More prayers for you as your big date will quickly arrive.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.