New AN in Seattle - GK/CK???

[mindyandy]

Caryl,

I never did contact the Seattle CK center. Mindy, aka mindyandy, had CK in Seattle back in January. She last posted in Februrary (saying it went fine), but she hasn't been around lately. Hope she is doing well, Mindy are you out there? I know she wasn't sure at first, and did some research into it, and soon felt comfortable enough to schedule the treatment there.

The main thing is whether you find the doctor there to be someone you would feel confident in, should anything odd develop afterwards. The procedure itself is very straightforward and highly automated, so it will be virtually the same at any facility.

Steve

THANKS STEVE....
GLAD TO SEE YA AGAIN...HOW ARE YOU DOING? I HOPE WELL.................

[sgerrard]

I KNOW I HAVENT BEEN AROUND FOR AWHILE......SHAME ON ME.... I have a newborn and have been very busy.

Newborn? No wonder! Congratulations, I'm sure you are very busy with - him? her? Was that before the CK? How old now?

It sounds like your CK in Seattle went really well, and that Dr. Sandy V. is a good and personable doctor to have. I also notice you had the "every other day" series, we had a question about that on the forum a little while ago, it is good to hear that it happens at several places.

If yours goes anything like mine, don't expect the fullness to go away quickly. I am six months out, and still getting it some, although less than the peak last December. But it is more a nuisance than anything else.

Take care,

Steve

[caryl]

Hi Mindy,

Thanks for chiming in.  Actually I thought I had sent a PM to you, but maybe I don't know how that works on this board.  It looked like it went to your email address.

Anyway, I'm looking forward to meeting with Dr. Vermeulen this Tuesday.  So, you mean you weren't given any steroids to take during the treatment?  If so, maybe they feel with 48 hrs between treatments there is less chance of swelling?  Did you have 6 gy for each treatment for a total of 18?

Did you discuss Gamma Knife with Dr. V or the UW team?

So glad to hear you are doing well.  You need to be ok to take care of that baby!

Caryl

[mindyandy]

Caryl
So how did your appointment go with Sandra? She is a great lady. Well respected and knows her stuff. What ever direction you chose to go please keep us posted. We can certainly try to help you answer questions. We are here for you if you need a shoulder to lean on.